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the shizzle => diet, training and injuries => Topic started by: uptown on October 26, 2005, 09:00:33 pm

Title: Rock climbing link to Dupuytren's disease
Post by: uptown on October 26, 2005, 09:00:33 pm
In 30/09/05 GP's "Journals Watch" I found interest in this:


Rock climbing link to Dupuytren's disease.
Br J Sports Med 2005; 39:639-44

"Hanging from a vertical face is not my idea of fun, but the researchers in this investigation may have had to in order to deliver the 1,100 questionnaires to the members of the Climbers' Club of Great Britain. Their hypothesis was to test if repetitive trauma to the palmar fascia predisposes to Dupuytren's disease. They only received a 51% response rate and almost all were male, but 19.5% had developed the disease and the age of onset was much younger than the general population. The conclusion was naturally, that it confirmed their hypoyhesis. The research was based in Wrexham, so no doubt the orthopaedic surgeons are spending their lives rearranging the hands of those who enjoy the Welsh mountain life."
Journal review by Dr Palmer - GP in Fareham, Hampshire.



Dr Palmer may make light of the research, yet I find it interesting reading.
I also gather that the disease mainly affects white men with North European ancestry - the odds are shortening for me...

I believe Bonjoy may have what appears to be the onset of said disease, illustrated below:

(http://www.celebrationhealth.com/handcenter/images/dupuytren1.gif)

Does anyone else have experience of this?
Title: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on October 27, 2005, 08:42:05 am
Surprised the research didn't have more to say about the long-term risks of gluing small pieces of marigold gloves to your palms...

Bonnos always refers to it as a 'syndrome' rather than a 'disease'.
Title: Rock climbing link to Dupuytren's disease
Post by: uptown on October 27, 2005, 09:41:49 am
I never saw him in the aforementioned 'rubbers' :wink:


'Syndrome' - Any combination of signs or symptoms that are indicative of a particular disease or disorder.
Title: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on October 27, 2005, 09:45:33 am
It's Dupuytren's Contracture to be pedantic.
 Interesting stuff uptown. I had a hunch that the climbing might have been the trigger factor for my early onset. I remember the doctor saying she saw a lot of builders with it, which made me think that hand stress and trauma might be involved. Have also met quite a lot of other climbers with it.
 At the mo it doesn't cause any probs apart from on big slopers (although superglue and chopped up rubber gloves can sometimes help :? ) and when guppying blobs.
Title: Rock climbing link to Dupuytren's disease
Post by: uptown on October 27, 2005, 10:07:26 am
Interestingly enough, repetitive trauma to the palmar fascia predisposes DD (Hmmm...)
ie: People who work with their hands will be more susceptible - Climbers, Builders etc.

This being the case, then will someone please explain the root cause of Peyronie's disease if you can!!  :wink:

As an aside JB - are you about the wkd? Jallum and I may pop down socially...
Title: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on October 27, 2005, 10:21:02 am
Will be out dans la grit Sat. Sunday looks poo, so might do some guide checking at eatswood or Shining Biff. No fixed plans of an eve yet. When youz thinking of comin' o'er?
Title: Rock climbing link to Dupuytren's disease
Post by: Jim on October 27, 2005, 02:07:55 pm
Quote from: "Johnny Brown"
Surprised the research didn't have more to say about the long-term risks of gluing small pieces of marigold gloves to your palms....

Genius, forgot about that
Title: Rock climbing link to Dupuytren's disease
Post by: Paz on October 28, 2005, 05:17:20 pm
I was looking to see what the palmar fascia flexor tendon insert looked like and came up with this:

Controversia theory number 6:  

There are up to 109 or 110 members of the climber's club who have an alcohol problem

"Table 4:2 Cutaneous and Other Superficial Signs Suggestive of Alcohol Misuse.
(Click the link for illustrations of each feature)
Spider Naevi
Telangiectasia
Facial Mooning
Parotid enlargement
Palmar erythema
Dupuytren's contracture
Gynaecomastia

http://www.medicouncilalcol.demon.co.uk/handbook/chapter_4.htm

There's a disclaimer saying you can also get it from repeated minor hand trauma but can anyone tell me you've never seen an old climbers (other than me) sink pints like there's no tomorrow?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: inn wislon on November 01, 2005, 08:41:38 pm
Quote from: "uptowngirl"
In 30/09/05 GP's "Journals Watch" I found interest in this:


(http://www.celebrationhealth.com/handcenter/images/dupuytren1.gif)

Does anyone else have experience of this?



I have experiance of that.....the correct name for it is 'The Shocker'
Title: Rock climbing link to Dupuytren's disease
Post by: Bubba on November 01, 2005, 09:43:00 pm
:lol:

Good first post!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on May 10, 2007, 11:55:26 am
Bonnos, give us the lowdown on this. A lump has appeared on my right hand these last weeks and its in the same place as yours...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: unclesomebody on May 10, 2007, 12:03:21 pm
Sometimes the truth really is stranger than fiction... because I also developed a lump on my right hand about 2-3 weeks ago. It's almost directly beneath my ring finger about 2/5th's of the way down my palm. It feels like a hard lump, but can also feel sinewy when massaged deeply. I don't know where it came from or why... but I doubt it's a good thing.  Even stranger is the fact that we are loved/hated just the same JB.  :shrug:
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on May 10, 2007, 12:08:28 pm
I too have one, in line with top of thumb and directly below ring finger. It's definitely got longer (about 1/2 " long now) compared to the lump it was a few months ago
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on May 10, 2007, 12:11:14 pm
Sounds exactly like mine... we can be lump brothers.
Some good info here word: Common onset in european males at age 30

http://www.dupuytren-online.info/index.html (http://www.dupuytren-online.info/index.html)

Seems like radiotherapy early on can have good results. Gonna try to get a proper diagnosis first, asap.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Ru on May 10, 2007, 12:26:55 pm
I'd be concerned about the radio therapy leading to injury down the tendon - basically, if radioan stops the fibrosing, it will also stop tissue repair. Not much of an issue for joe public, but potentially more of one for us. Does sound good though and if mine gets worse I'll find out more.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on May 10, 2007, 12:50:04 pm
Mine doesn't bother me at the moment (apart from a callous forming on top of it) I'm just leaving it be.

Callous might just be from recent spate of biking / kayaking anyway.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on May 10, 2007, 01:04:07 pm
Yeah I notice discomfort mainly when cycling.

I think I'd be keen to nip it in the bud rather than worry about impaired tissue repair.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Pantontino on May 10, 2007, 01:13:34 pm
Mine was worse when I first got it, but these days it doesn't bother me at all.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on May 10, 2007, 01:32:08 pm
Apparently there is a period of initial growth followed by years of not much. Then it grows again, this time curling your fingers up and creating horseshoe lumps that mean you have to superglue rubber on to hang slopers.

In good company at least - already would seem to be prove the prevalance amongst long time climbers!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 10, 2007, 01:51:31 pm
As far as I was aware, there ha never been a good quality study showing a link.  I have looked before but never found anything appropriate.  I'll have to have a proper look on PubMed when I get the chance.

All about myofibroblasts.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 10, 2007, 01:59:11 pm
Bonnos, give us the lowdown on this. A lump has appeared on my right hand these last weeks and its in the same place as yours...
That link you sited is very good and there's not much info I could add. Reading it I learned some new thing, like people with DC might be well advised to avoid/stop taking Glucosamine and/or Chondroitin and the potential link with Insulin Deficiency - http://www.dupuytrens-a-new-theory.com/pages/1/index.htm
 It sounds like radiotherapy might be a good option for early stage DC (mine's probably too far gone now). I'd look into it further if I was you. Don't expect to be able to get it for free or in the UK though. Sound's like Germany or Austria is the best bet. If it suceeded in stopping it dead it would be worth any associated risk IMO.
 For my money if/when contracture becomes a problem I will go down the line of Needle Aponeurosis(sp?). Again I will proabably have to fund this myself and go to Paris to have it done.
 
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 10, 2007, 02:04:36 pm
As far as I was aware, there ha never been a good quality study showing a link.  I have looked before but never found anything appropriate.  I'll have to have a proper look on PubMed when I get the chance.

All about myofibroblasts.
I don't need a scientific study to tell me what I can see clearly for myself. The number of long time climbers coming out of the woodwork with early onset DC is enough to convince me that climbing is the trigger.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 10, 2007, 02:05:08 pm
For my money if/when contracture becomes a problem I will go down the line of Needle Aponeurosis.
This is essentially a closed method of Dupuytren's Fasciotomy.  Works OK in early stages for contracture release but recurrence of contracture is 100%.  But, it's a minimally invasive method.  Some say there is a high risk of neurovascular injury (numb finger, worse case amputation) but in experiences hands this shouldn't be too high.

EDIT to add reply to Bonjoy:
I don't need a scientific study to tell me what I can see clearly for myself. The number of long time climbers coming out of the woodwork with early onset DC is enough to convince me that climbing is the trigger.
Fair enough, but this is SCIENCE and not hearsay.  It may well be a cause, but very big, high quality studies that showed no increase incidence in recurent palmar trauma.  That doesn't mean it doesn't have an input, just that no-one has demonstrated it properly.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 10, 2007, 02:18:19 pm
 Oh right, I'm to suspend judgement until SCIENCE replicates the patently obvious? What are the odds of a big study into a climbing link to DC? In the meantime I'll draw my own conclusions.
 I would have said it's highly plausible/likely that the repetitive trauma/pressures created by climbing intensively would be very individual to climbing and therefore the study you mention would prove/disprove nothing in relation to it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 10, 2007, 02:36:27 pm
You know that's not what I'm saying.  I expect there will be a link between climbing and DC. 
Another point, you would think it would be the lower level climbers who go out regularly (blindingly obvious) not the high level climbers who tend to crimp more (crimping causes less palmar fascia trauma that jug pulling).  Views on that?

My Gran smoked 100 fags a day and she lived til she was ......... blah
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 10, 2007, 02:45:25 pm
 No, i'd think the opposite, the micro traumas being a result of more strain through less tissue rather than big holds jabbing into palms. Besides I never postulated that it was palmar fascia trauma caused by climbing that caused the predisposition to DC, it could be some other climbing related factor for all I know, such as increased normal growth in the area, or an increase in some metabolic substance in the area caused by the type of hand use.
 
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 10, 2007, 02:53:50 pm
I think this is more likely.  We know it's myofibroblast related, and as I said above direct trauma hasn't been shown to cause it.  Dupuytren's is far more complex and much less well understood than many think.  For example, fingers involved.  Generally it's mostly ring and little, is this different in climbers?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 10, 2007, 03:13:46 pm
 Yes they tend to be the first affected, which is why i'm not quick to jump to the conclusion that trauma is the initial stimulus, as these fingers are not exceptionally more likely to be injured than others. I see a relationship between climbing and DC, but I'm not suggesting it's as simple as climbing related trauma = DC.
 One possibility may be that small undetectable disease events occur in the hands of susceptible individuals at this location, but if unaggrevated pass without progressing to anything physically apparent, however due to climbers regularly stressing the area the likelyhood of one such event progressing and snowballing into DC is greatly increased. The fact that early radiotherapy has good results (ie remove one small nodule and sometime the condition is stopped for good) would suggest that the presence of DC affected tissue leads to more areas becoming affected.
 Enough dancing on this pinhead. You know and I both understand this as little as the next man and only marginally less than the experts.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 10, 2007, 03:18:07 pm
Don't sweat it BonJoy- even the experts ain't that expert on the field.  But there's a lot of good research going on at the moment.

Bottom line?  If you want treatment see a hand surgeon.

My original point was that the study quoted isn't of high quality and adds little to what we assume anyway.  I need to post more clearly.   :guilty:
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 10, 2007, 04:45:01 pm
Just ran a quick SCIENTIFIC study on the contacts in my mobile that I know have DC. Of the climbers 18.9% had DC (7 out of 37), as compared to 0% for the none climbers (0 out of 50 approx). Obviously not the most rigorous of studies but enough to convince me of a link
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 10, 2007, 05:05:50 pm
Gotta love SCIENCE!!
So 18.9% compared to population mean of 5 to 25% depending on country (generally 5-15% of over 60s).  This is obviously a non-age/ gender etc matched grouping you have.  I assume they are young so I agree there's summat goin on.

I don't suppose you did a survey of how many and which fingers were involved?  Family history?  Laterlity?  I'm not taking the piss, I'm genuinely interested.  Oddly I was thinking about this earier this year.   :-\
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on May 10, 2007, 06:41:22 pm
Cheers BJ. As you mentioned, I think nipping it in the bud will be worth some risk

Quote
For example, fingers involved.  Generally it's mostly ring and little, is this different in climbers?

To the idle thinker, these aren't obviously the most stressed fingers in climbing. However I reckon 90% of those who pop a tendon do it on the A2 of the ring finger. I think this is also the tendon most commonly affected in Dupuytrens.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Teaboy on May 10, 2007, 07:11:17 pm
Strange this should appear on here today as I was at the Jorvik Centre in York at the weekend reading about how it was indicative of Viking ancestry (passed down through the mothers lineage) which is good news as I've always thought I was Welsh. I've got one on my right hand, I'm 37 yrs old, been climbing 20 years and enjoy going out and quite nights in with a bottle of wine. Oops, wrong site!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 10, 2007, 07:44:48 pm
I think this is also the tendon most commonly affected in Dupuytrens.

Sorry to be anal, but the tendons are completely unaffected in Dupuytren's.  It's all fascia.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: richdraws on May 10, 2007, 11:13:31 pm
Have any of you fine freaky fellows affected by Dupuytren's disease been playing around on the rings? Particularly doing false grips work like muscle ups? I have a strong feeling mine was caused by still rings exercises. Currently it is only ever exacerbated by jug pulling types of climbing (usually indoor).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Monolith on May 10, 2007, 11:25:53 pm
Good to hear that within climbing-related medical discourse, the crimp isn't getting a bad wrap for once.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on May 11, 2007, 08:08:11 am
Strange this should appear on here today as I was at the Jorvik Centre in York at the weekend reading about how it was indicative of Viking ancestry (passed down through the mothers lineage) which is good news as I've always thought I was Welsh.

Mine is on my right hand, although i am (predominantly left handed). My family tree roots, however, disappear in Eastern Europe somewhere, so there is a vague possibility of Viking links.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on May 11, 2007, 09:47:42 am
Ah, that explains my strong Nordic 'look'. Saw Dense last night, he has it too, the lumps I mean not the 'look'. Does that alter your phone stats Bonnos.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 11, 2007, 10:41:00 am
You think I have any old riff-raff in my phonebook?
Well yes actually it does, 8 out of 37 = 21%
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 11, 2007, 10:55:44 am
I wonder if locality (ie rock type you usually climb on) affects risk.  If we assume direct PF injury is contributory (which it may not be), sloper shufflers may be at higher risk, whereas crimpers' risk may be lower.
What about warm up/ down/ stretching routines?  Does a good palmar massage and warm-down stretch post-climb reduce your risk? 
Does taking NSAIDs peri-climb affect it? 
Do top end climbers drink more alcohol (which has been partially implicated)? 
Is there a greater genetic input in climbers?

As we said before, I'd love to look at this properly but with the incidence as it is you'd need a large sample size of high level climbers to assess all these variables.  Shame really, it's a fascinating subject and the mechanism(s) would be interesting stuff.

I'm coming to the conclusion that SCIENCE is losing out to common sense on this one.   :o
Title: Re: Rock climbing link to Dupuytren's disease
Post by: bobkatebob on May 11, 2007, 11:08:38 am
Are you guys talking about Dupuytren's contracture?
It's not really a disease (in terms that most people think of a disease) as it is not contagious. It's basically like a type of RSI.

My Mum had one and she was a Physio (she hasn't done any climbing or building work).

She had an op to sort hers out. Her hand is fine now. If your Dupuytren's contracture is getting worse it might be best to go to your GP to see what they can do before things get too bad.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 11, 2007, 11:11:46 am
Are you guys talking about Dupuytren's contracture?
It's not really a disease (in terms that most people think of a disease) as it is not contagious. It's basically like a type of RSI.
Thanks for clearing that up.
Now RSI, there's another one........
Title: Re: Rock climbing link to Dupuytren's disease
Post by: bobkatebob on May 11, 2007, 11:22:56 am
Thanks for clearing that up.

Hmmmmm......I'm still getting used to the multiple page set up on UKB  :oops:
Title: Re: Rock climbing link to Dupuytren's disease
Post by: BillA on May 12, 2007, 02:58:39 pm
Sorry for the intrusion - noticed this discussion and thought I'd throw some things out for info -

I have early DC - a single lump in one hand with some evidence of tissue thickening. While hereditary, I believe that mine was "kicked off" by some hand surgery for a broken thumb as it appeared shortly thereafter. There seems to be a link between DC and the healing process - which may be the climbing connection. It's also why the radical surgery often causes it to come back worse that before the surgery.

Surgery is one option. A rather new option is needle aponevrotomy where the cords are broken up and the fingers released (advanced DC causes the smaller fingers to curl in). Check out www.handcenter.org. The latest and greatest news is an injectable enzyme treatment that is in stage 3 clinical trials and is showing great promise. The treatment simply dissolves the tissue buildup. Google Auxilium Pharmaceuticals and AA4500 for info. Hopefully, the drug comes to market soon.

Cheers.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 14, 2007, 09:36:14 am
AA4500 is collagenase. Injections of it are not aimed at removing the scarred tissue, they are aimed at creating breaks in cord formations just like NA does mechanically. Although it sounds good superficially I am highly sceptical that it will be better for climbers than NA. As collagenase breaks down collagen, injections of it into the hand extremely close to pulleys and tendons (which are made to a large extent from collagen) is a very risky business.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 14, 2007, 10:06:01 am
Had a brief look into this, thanks for reminding me BJ.  There's only one article I have seen directly assessing Dupuytren's with climbing, which is the one we're talking about.  I'm still not sure about their conclusion that
Quote
CONCLUSIONS: This study further strengthens the hypothesis that repetitive trauma to the palmar fascia predisposes to the development of Dupuytren's disease in men.

LIST (http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?itool=pubmed_DocSum&db=pubmed&cmd=Display&dopt=pubmed_pubmed&from_uid=16118302) of more applicable papers- again, nothing concrete. :shrug:  Mikkelsen did note an increase incidence of DC in patients with recurrent palmar trauma, way back in the day.  Fairly good samlpe size but I haven't read the full article so I can't comment in depth.

BonJoy, there's a fair few articles on your percutaneous needle fasciotomy (http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=12954251&query_hl=7&itool=pubmed_docsum), seem OK results from what I've read so far.  Recurrence is high as I said before, but that's nothing new. 
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on May 16, 2007, 02:15:00 pm
Just had a session down the wall, and it's the first time it's actually bothered me during a session. Bugger. Guess it's pulling on big jugs, which i don't normally do outside.

So does it seem now that Glucosamine is a bad idea? I am sure in a thread on this subject a while back (which i can't find now?) indications seemed that it was a good idea?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 16, 2007, 02:58:37 pm
No evidence it helps, and it's aimed more at joint problems etc.  BUT, it may be worth a go.  Your problem is the bilkiness of the tissue which is susceptible to irritation eg when using jugs.  I suspect nothing will help that, apart from avoiding jugs at the wall.  Give it a try and see  :shrug: Let us know.  [takes a while to have any effect remember]
Title: Re: Rock climbing link to Dupuytren's disease
Post by: dave k on May 18, 2007, 08:29:53 am
Want to find out how progressed my symtoms are relative to others

1) 2 obvious lumps in RH, 2 less obvious in LH- RH have been there for atleast 3 years/LH for about 1
2) Little  impact on climbing- except indoors on one particular hold/problem (avoiding it)
3) Have been waking in the morning recently with numb, tight/contracted fingers (little and ring)-this could optimistically be to do with sleeping on my RH or just that I have been training on crimps too much. Within 5 mins after waking its fine

Anyone actually know of someone with serious symtoms and how long this took to develop?

Or someone who has had an operation on it and its effectiveness?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 18, 2007, 08:59:50 am
Sounds similar to my condition after 3 years. I've had for 7 year and I don't have any contracture to speak of, although there's plenty of nodules. I can't put my hand properly flat on a table on my right or bend fingers back beyond straight, but they all still straighten out fully and climbing is fine except for dynos which are painful and some slopers. I used to get numbness in the last two fingers but assumed this was due to ulner nerve impingement related to my sleeping posture.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on May 18, 2007, 11:50:02 am
Saw my Dad last night, and noticed he has it is his right hand (same as mine). Never knew before, guess the inheritance thing is true then! He reckons he's had it at least ten years, hasn't really climbed in that time though he does a lot of sailing, guess the rope handling might affect? It doesn't bother him anyway, which makes me feel better. Its not as advanced as Bonjoy's though. Hopefully my left will follow his and never be affected either.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on May 18, 2007, 11:55:09 am
Mine is about an inch long, halfway between little and ring fingers, and extenidning from "lifeline" on palm downwards. Now got a wierd callous forming on the top end. Doesn't restrict movement at all.

Maybe we should start a thread "Quality Dupuytren's pics"?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on May 18, 2007, 11:58:37 am
Mine is about an inch long, halfway between little and ring fingers, and extenidning from "lifeline" on palm downwards. Now got a wierd callous forming on the top end. Doesn't restrict movement at all.

Maybe we should start a thread "Quality Dupuytren's pics"?
Erm thanks, but I don't want to see photos of you one incher thanks.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Tim Broughtonshaw on June 20, 2007, 03:33:45 pm
FYI

Just been to see specialist (Mike Hayton) about my Dupuytren's. He confirmed it was early onset and said he would only operate when i couldn't put my hand flat on the desk. He echoed bonjoy's comments about the enzyme injection and said its difficult to get hold of someone who would do it and its expensive and not available on private heathcare either. 

So now thoroughly in the knowledge that i am of viking descent anyone know a good horned hat shop?





Cheers
tim
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Ru on June 20, 2007, 03:42:44 pm
Did he mention the Radiation therapy for the initial stages?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Tim Broughtonshaw on June 20, 2007, 03:55:25 pm
Hi Ru,
            knew someone was going to mention that. I forgot to ask him about that specifically however i did say i was keen to get it sorted whilst i wasn't able to climb and he didn't volunteer the procedure on private. So maybe it isn't available or on the list of approved treatments. Or maybe they only treat it as worthy of operation when its acute.




Cheers
Tim
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on June 20, 2007, 04:02:48 pm

So now thoroughly in the knowledge that i am of viking descent anyone know a good horned hat shop?


No, but I'm up for a spot of pillaging if anyone else is keen to join in.

Erik?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on June 20, 2007, 04:13:12 pm
Whilst researching this I came across a possible link with Vitamin c supplements, which I coincidentally have been taking the last 6 months. Have since stopped...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Tim Broughtonshaw on June 20, 2007, 04:28:22 pm
Whilst researching this I came across a possible link with Vitamin c supplements, which I coincidentally have been taking the last 6 months. Have since stopped...

Well for me personally i don't think this could be a contributing factor as i have not taken these for ages. I am however taking them now for other reasons but for 6 months before it first appeared and for a month after it was most obvious i wasn't popping any vit c pills or those soluble fizzy drinks.

Cheers
Tim
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on June 21, 2007, 08:16:55 am
Whilst researching this I came across a possible link with Vitamin c supplements, which I coincidentally have been taking the last 6 months.

The only two supplements i evert take are Vitamin C and Glucosamine Sulphate. Now find either (or both) can be responsible. Bugger.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: jfw on June 21, 2007, 08:50:03 am
JB can you post a link to the vit C thing (if you can remember where it was) ta!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on June 21, 2007, 05:52:58 pm
First thing to say is, after a bit of googling the other day, there doesn't seem to be any proper research going on. There is a lot of hearsay knocking about between sufferers though. Couldn't find anything more concrete about Vitamins than falls into that category. Enough to put me off though, never been keen on supplements. Best source of info I came across in a very quick search:
 (http://www.dupuytren-online.info/Forum_English/search.php?type=themen&search=vitamin&page=1)
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on June 22, 2007, 11:53:48 pm
I'm not aware of any link between Vit C and Dupuytren's.  If there is you'd better avoid citrus fruits etc etc

Also, UKC is on the subject (http://www.ukclimbing.com/forums/t.php?t=248706).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on September 08, 2008, 04:02:30 pm
Just read a very interesting article citing compelling eveidence to suggest a link between insulin deficiency and/or insulin resistance and DC. Would highly recommend folk with DC read it http://www.dupuytrens-a-new-theory.com/ (http://www.dupuytrens-a-new-theory.com/)
Interesting info about possible link to Vitamin D deficiency at the end. More sunshine and prawns please doctor!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: dave k on September 09, 2008, 10:30:26 am
Just got this from the same website

"Persons taking the glucoseamine/MSM/Condroitin complex have been anecdotally associated with DC:  Research has shown that glucoseamine can cause insulin resistance and infertility.  Furthermore, histologic findings have discovered that DC tissue samples contain a large amount of chondroitin sulphate, along with myofibroblasts, fibroblasts, type III collagen, and reducible cross-linkages.  This indicates that condroitin might be unsafe for those persons who are predisposed to developing DC." 

Could this be a possible link to climbers. I have certainly taken glucosamine over the last 3-4 years and during which DCT has developed on both hands. during the last 6 months I have also been taking Condroitin- although I actually stopped taking it and gluco a few months back as I felt it was not helping with my tendonitus
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on September 09, 2008, 11:03:43 am
I took it for a couple of months following a knee op, it soon seemed to be having wierd effects with clicking joints and joint discomfort so I stopped. Similarly my DC appeared and was most aggresive during a period whilst I was taking Vit C. I stopped and it hasn't flared up for a long time. I'm pretty cynical of supplements generally now.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on September 09, 2008, 11:08:03 am
I took GS/MSM/Condrotin for about a year, over which time what was a minor DC lump got to about a cm long. I stopped taking them when the last bottle ran out about 6 months ago, and it hasn't got any worse (or better for that matter).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on October 07, 2008, 01:33:10 pm
http://www.ukclimbing.com/articles/page.php?id=1312 (http://www.ukclimbing.com/articles/page.php?id=1312)

I think mine is pretty minor by comparison!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: stevie haston on October 09, 2008, 09:40:27 am
hello havent got much to add, Laurence and I both have DC, both have had more than our fair shair of A2 injuryies. A mate Steve Downs had it bad, was worsening so went for the op, despite the risk of accidental damage, good result after long rehab, he couldnt really climb before, coudnt really climb after(old joke) . He had to do lots of finger stretching after,kinda yoga for the fingers and rubbedvitamine E into the skin and did loads of ultra sound.I am terrified of the op and have been using daisy oil(I can hear you laughing) it seems to have had some result or I am being dellusional I  also now look like a small flower.Laurence eats some kind of daisy pill, I rub oil into the thing itself and  she has had possibly better results. I think doing something about it is a good idea as the clawed hand in the really badly affected is awful.There seems to be a very strong link between climbers and DC and people who train their hands have also reported an unusual and alarming incidence. hope this helps.  Stevie.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on October 09, 2008, 10:16:24 am
So many climbers with DC! I just don’t understand why many medical types are so adamant there is no link.
Why the daisy oil/pills? I’ve not heard about this before. Am always keen to hear about any/all possibly helpful practices.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on October 09, 2008, 10:54:00 am
So many climbers with DC! I just don’t understand why many medical types are so adamant there is no link.

Its all rather anecdotal and no one has formalised a proper eidemiological study into this.  You need SCIENCE to answer these questions reliably (whilst it might be "obvious" I'd still argue that there are many intricate facets to the scientific methodology that need to be addressed before a clear conclusion can be reached).

Ideally a prospective cohort study (http://en.wikipedia.org/wiki/Prospective_cohort_study) (a bit over-simplified but should give the gist of it) would be required to investigate, but given the long-term nature of the onset and development of the disease its not going to get you any answers very quickly, and this sort of study design is quite expensive, but it does overcome the main problem of the other study design that could be used which is a cross-sectional case-control study (http://en.wikipedia.org/wiki/Case%E2%80%93control_study).  The main problem with this when applied to DC will be the massive recall problems of asking someone how much they were cranking 20-30 years ago, so its still going to be tricky to draw any a solid quantitative conclusions as to how much climbing results in how much of an increase in risk.  Any results will be very crude.

Studies may be under way, but it all comes down to funding, and thats a very competitive area, with many worthwhile studies not getting funding.  I had a colleague at Manchester Uni when I worked there who was a plastic surgeon who was interested in investigating the genetic contribution to the aetiology* of DC, but he didn't get the funding.  How much funding is going to be thrown at DC?  Well probably not a lot, yes its relatively common, but its not life threatening, and what burden does it place on the NHS (or other medical bodies)?  Nowhere near as much as that of obesity (and associated diseases such as non-IDDM)/cancer/hear-disease which is where most of the money goes.

* From stuff I looked up and posted in the UKC discussion of the article.  DC is a complex disease, it has a genetic component as the sibling recurrence risk of 2.9 (95% CI 2.6-3.3) (see http://linkinghub.elsevier.com/retrieve/pii/S0363502305008142 (http://linkinghub.elsevier.com/retrieve/pii/S0363502305008142) )  (this means that if your sibling develops DC you have a 2.9 times greater risk of developing it over someone in the general population).  There is also evidence from a five-generation family that were strongly affected by DC that indicated there is a putative locus has been identified on an ~6Mb region of chromsome 16q11.1-q22. But this was identified based on one famliy alone and this had a very strong effect (LOD score of >3 in one pedigree is indicative of a very strong effect). This is only a region of the genome, it hasn't identified any disease gene itself, let alone polymorphisms within the gene that result in susceptibility. There will be many other loci associated with disease, and thats before you start factoring the environment into your model.

Thats not to say that DC is purely genetic, its not, its a complex disease with both genetic and environmental components that will interact with each other to give an overall risk of developing the disease.  Its not just as simple as "climbing causes DC", it might increase your risk, but what baseline are you as an individual coming from (i.e. your genetics gives you a different pre-disposition from your mate who's got a different genetic make-up and might not climb).  How much cranking do you have to do to increase your risk by a given proportion?  All very intricate and tricky to work out, and it requires money funding and people to go out and recruit participants (not all of whom will be willing to take part, but those affected generally are), you then need to age and sex-match them to controls (who haven't got DC, often harder to recruit these people) etc. etc.

Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on October 09, 2008, 11:40:01 am
Yes, yes, yes. I know that you can’t state something as fact/science without studies to back it up, but like you say such studies are not that likely to be forthcoming or very definitive if they do, etc. What I mean is, why do medical types so adamantly dismiss the anecdotal evidence? Is it the case that nothing, even the most self evident everyday occurrence is not accepted by medics unless there is a paper to back it up? Is there a paper to prove that the sky is blue? Do medics dismiss the anecdotal evidence of that too? Or is this rigid mindset only applicable to things medical, if so why?
When I say, ‘I believe intense climbing over a period of years causes the early expression of DC in pre-disposed individuals’, which is pretty much the boldest claim anyone is making, I’m interested in the opinions of people in related fields, not a blanket, ‘I’ll believe it when I read the paper that no one is ever going to write’ type answers. Is it anathema for medical people to form judgements based on compelling observable evidence in the world around them, when the likelihood of back-up SCIENCE is highly unlikely in the near future?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on October 09, 2008, 12:47:34 pm
Actually until recently medicine has progressed through anecdotal evidence and trial and error.  It was only in late 19th century that the field of epidemiology was started after Dr John Snow (http://en.wikipedia.org/wiki/John_Snow_(physician)) plotted out the location of cholera incidences and as a consequence had the handle removed from an infected water pump.

Even then that wasn't really the true start of the use of SCIENCE in medicine, and its only in the late twentieth century that you started to hear the term "Evidence based medicine" which has been a great buzz pharse, but really (in general) just means the scientific method applied to medicine.

The judgements based on compelling observable evidence is the starting point for investigating an area and serves as the basis for the formation of a testable scientific hypothesis.  You still get case-reports written up in the BMJ, and they are very useful, and the more reports there are the more compelling the evidence becomes, but at a certain point you need to say right, lets formalise this and control for confounders (http://en.wikipedia.org/wiki/Confounding) which may be making it look like theres an association between climbing and DC, but in actual fact its another aspect thats strongly correlated with the activities of climbers thats causing the onset of DC in susceptible individuals, and this won't be revealed until you've done a well-designed epidemiological study.  Cconfounding is a hugely problematic area and worthy of tons of papers in and of itself, what might be confounding in this situation is anyone's guess, it could be nothing in which case hard climbing will be a big risk factor, but it could be lots of things but until you investigate it you won't know.  The more data (in terms of people recruited to a study and the information collected about them) the better suited you will be to investigate this.

Whats really interesting is being able to identify those people who are pre-disposed to developing DC if they spend periods of years climbing intensely, that way you can advise them that they are free to indulge in climbing intensively, but they are more likely (or less based on their genetics) to develop DC.  This was in part what my ex-colleague wanted to start investigating, and its where people who have DC can help researchers by agreeing to particpate in studies.

Its all very well saying in retrospect that you've developed DC as a consequence of climbing, but the horse has already bolted for someone who has the early signs.  What should perhaps be of greater intrest for people who already have DC (and there is some research/epidemiology out there on this*) is how effective the different treatments are, that way those affected can make an informed choice as to which treatment they feel will suit them.  Anyone seeing a doctor/clinician/surgeon about DC should ask them if they are aware of any studies that they can get involved in.

Not trying to be an arse about this, but with a background in epidemiology I felt I could shed some light.

P.S. - Blue sky is subjective, what if your colour blind?  It was science that determined that the water-molecules in the air reflect wavelengths of a given frequency which appear blue to most people without damaged or dysfunctional rods/cones in their eyes.

* I might be able to dig up some papers if interested.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on October 09, 2008, 12:59:37 pm
 The possibility of cofounders exists, I struggle to envisage what they may be, toxic rock, bad reaction to chalk, something in Sheffield water....
You must admit that if a well over average number of climbers express DC, at an unusually early age, with an added bias toward people doing a greater quantity and intensity of climbing over a period of years, the balance of probabilities is that the intense climbing is a causative factor.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: lagerstarfish on October 09, 2008, 01:01:17 pm
Slackline,
without reference to a reliable source like Lagerpedia tm, I just can't take you seriously.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on October 09, 2008, 01:53:24 pm
Sorry Bonjoy I think you've misunderstood me.  

I'm not dismissing the evidence that there is a correlation between intense climbing and onset of DC, its clear that climbers do get DC, perhaps at a higher rate than the general population (but no ones attempted to quantify that*).  What I am saying though is that correlation (and thats all it is until you've done the formalised research) is not the same as causation, and there are (in epidemiology) different types of causation, necessary, contributory, sufficient etc..  In this case climbing is most likely to be a contributory causation to the onset of DC, and the correlation serves as a starting point for further investigations.

I also tried to shed some light as to why the studies haven't been done yet (i.e. not life-threatening, low cost to health-care services).

As I say for people who are already showing signs of DC its more important to understand the efficacy of different treatments for which there is a body of evidence (http://scholar.google.co.uk/scholar?num=100&hl=en&safe=off&client=firefox-a&rls=org.mozilla:en-GB:official&hs=6JF&pwst=1&resnum=0&q=treatment%20of%20dupuytren%27s%20contracture&um=1&ie=UTF-8&sa=N&tab=ws) rather than worrying about what factors have invluenced the onset as nothing can be done about that.

Sorry Lagers, I don't have the wit to write a Lagerpediatm entry, but i'd recommend Hennekens & Buring (1987) Epidemiology in Medicine as an excellent starting point for anyone who wants to read more about epidemiology.

* When you say "well over average" how are you quantifying it against the background population rate?  I remember further back in this thread that you'd gone through your phones contacts list and compared climbers vs non climbers, but thats a relatively small sample size (so generalising to the rest of the population is dubious) and there is going to be some bias.  For example do the people you climb with tend to be older than those who you socialise with, e.g. you might have nephews & neices phone numbers in your phone, or you may have more male climbing contacts (and the ratio of male to female DC is 3:1) and more female non-climbing contacts, which in and of itself would bias your sample as older males are over-represented in your climbing group?  This is pure conjecture on my behalf, but hopefully serves to demonstrate how simple things can cloud the problem, and this is where sex and age matching start helping out.

Its relatively straightforward to do, since you simply ask people presenting with DC if they've climbed and to what level for what period of time, but to date thats not been done.  In the past though people were asked if they did "manual labour" and no correlation or association was found between this.  I'd imagine its the lumping of climbing into this ill-defined catch-all phrase that is perhaps the underlying reason why medics are dismissive of climbing as a contributory cause.  This in itself is wrong since there are very unique and specific high-stress' and no doubt micro/macro-traumas that result as a consequence of intense climbing that are never seen in "manual labour".
Title: Re: Rock climbing link to Dupuytren's disease
Post by: stevie haston on October 09, 2008, 02:13:03 pm
Bonjoy, its just homiopathic stuff, seemed to work. Stevie
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on October 09, 2008, 02:21:31 pm
I only mentioned the number with/without on my phone list as a rough indicator to illustrate the point. Obviously it is not a representative cross section of society. However it is a list of some people who I know and is not selected with a bias for/against having DC, which is why I used it to make the point.
I'm taking population average to be roughly 10%-15% occurance within UK white males, which tends to be what I've seen quoted. Lower prevelance in females (roughly 20% of all cases of DC), so roughly 2-3% in of UK white females. Most literature seems to indicate that most cases are in people over 40. To be conservative I'd say that means at the most 30% of cases being below 40 years of age. What does that make the average for white blokes under 40, 3-5% approx? That's the kind of figures I'm thinking. This is well below the % of regular climbers age below 40 I know of with DC. As I haven't gone around asking anyone if they have DC, I only know of those who have happened to mention it, if anything my figure for the percentage of friends with DC is going to be too low.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on October 09, 2008, 02:37:32 pm
Fairy-muff, hopefully I've helped answer in the last post why doctors may be dismissive about the link between climbing and DC (i.e. they wrongly lump it with 'manual labour' in their assessment of a DC patients past activities).

Nor was I trying to pick apart your phone list estimate, although you've misinterpreted what I've written.  Its not a bias for/against DC that would be the problem, thats what your aiming to assess.  Its the division between climbing and non-climbing contacts where bias may arise if, for example, you climbed predominantely with males, in which case females (who at a lower risk anyway) are over-represented in the non-climbing group (or under-represented in the climbing group if you wish) and will bias any conclusion based on the sample.

Statistics is a fickle beast (or perhaps its those who carry out statistics, i.e. me), either way I'm going to leave it there for now as I've a ton of cancer survival statistics to collate before the end of the day.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tommytwotone on October 09, 2008, 02:41:28 pm
Just re-read a lot of this - very interesting, if a little scary.

Can see Slackers' points regarding the necessity for SCIENCE, but agree with Bonjoy - putting SCIENCE aside, I don't feel like it's a massive leap of logic to say "doing loads of serious, finger thrashing climbing is pretty likely to result in a higher risk of developing a condition that knackers up your fingers" is it?

Think the only thing I could add to this discussion is to say don't read that UKC article while eating your lunch...those pics made me feel a bit queasy for sure.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on October 09, 2008, 04:38:00 pm
A possible 'confounder' might be the higher level of awareness of DC in the climbing community. I recognised mine in the very early stages whereas I've met a few non-climbers since who have far more advanced DC without a clue what it is.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on October 09, 2008, 09:37:48 pm
I just don’t understand why many medical types are so adamant there is no link.

I'm not sure that's the case, is it?  As far as I recall (I may be wrong) noone here has said climbing does not increase the risk of Dupuytren's, only that there's no study proving it.

Before now, various causes and effects were taken as fact:  Drinking port gives you gout.  Alcoholism and using vibrating tools gives you Dupuytren's etc etc.  Most have never been proven, and many have been disproven.  Just because it seems anecdotally correct or logical, it doesn't make it fact.

I can quite believe climbing increases the risk of Dupuytren's but it's never been proven in SCIENCE.  Yeah, it is logical.  Yeah, a lot of climbers have it.  But (as a daft example) the Viking genes are associated with an increased risk of Dupuytren's, so Viking genes predispose people to become boulderers.  Thus it isn't a direct link between bouldering and Dupuytren's.  Assumption is the mother of all fuck ups.

But, at the end of the day, I expect you'll be proved right, Jon, and a link will be found once someone does a decent sized study.  If that ever happens.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on October 09, 2008, 09:39:52 pm
A possible 'confounder' might be the higher level of awareness of DC in the climbing community. I recognised mine in the very early stages whereas I've met a few non-climbers since who have far more advanced DC without a clue what it is.

Or people are more symptomatic because they climb and report it, whereas Joe public doesn't get tenderness and lives with it so rates seem lower.   :shrug:
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on October 09, 2008, 10:26:03 pm


I'm not sure that's the case, is it?  As far as I recall (I may be wrong) noone here has said climbing does not increase the risk of Dupuytren's, only that there's no study proving it.

I wasn't really referring to comments made on here, more the reactions by medical practitioners out in the real world.




Here's an out of the box confounder. Maybe people of viking origin are pre-disposed to go rock climbing  ;D
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on October 09, 2008, 10:44:25 pm
Here's an out of the box confounder. Maybe people of viking origin are pre-disposed to go rock climbing  ;D

Fuck me, that's genius.  Good work :lol:

Anyone that dismisses the possibility outright is a moron and I suggest you change your medical practitioner.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: stevie haston on October 12, 2008, 09:58:33 am
hello I must apologise for getting something wrong, laurence corrected me as DC is affecting her badly again. I took daisey oil which is flowers disolved in alcahol and  rubbed it in to the 'cord', she took some kind of homiopathic pill which can  be (in france) recomended for this kind of thing. Another friend (female) has just had the needle treetment rather than the operation and is totally satisfied and very happy with this treetment. It really looks to me, that simple on down time from the invasive surgery, the needle way is far better (quicker to heal, quicker to go back to using your hands). I love the stats thing with Vikings , as being of Viking stock seems to predispose you to nearly everything except sickle cell. Lots of these statistics,  are drawn from the wealthier part of the population in northern europe and north america where you guessed it, lots of people have Viking stock. Not saying its wrong, my dad was pure Viking and he had DC (hard labour), I am not 100% viking but havemild DC  (lots of climbing particularly with axes. Laurence is pure viking and she has DC (climbing), her dad is pure Viking and has DC , he put it down to holding onto cycling bars. I do think mine would be much worse if I hadnt been stretching my fingers for all these years. Anyway goodluck to everybody. Stevie   
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Scouse D on November 16, 2008, 10:13:56 pm
Bonjoy,
If my number is on yor phone you can now add me to your lump buddies list. Mine has come on over the last few weeks really.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on April 14, 2010, 08:33:47 pm
Bonjoy,
If my number is on yor phone you can now add me to your lump buddies list. Mine has come on over the last few weeks really.

add me to that club. RH palm, between ring and little finger. Pronounced looking tendon and hardness on the palm. Came on during my trip, thought it was just a spikey jug had stuck me, obviously not. Guppying will never be the same again.
(24 years old!)
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 14, 2010, 08:52:05 pm
Is that the same as the lump that you thought was scar tissue a few weeks ago or another one?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on April 14, 2010, 08:54:12 pm
the very one. I checked back through my blog and it isn't in the right place to be my prior injury.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 14, 2010, 09:01:49 pm
So jfw was right? You beter wad him.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on April 14, 2010, 10:01:00 pm
So jfw was right? You beter wad him.

or else?  ;D
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 15, 2010, 10:57:46 am
...or else karma may once again seek you out.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Plattsy on April 15, 2010, 11:05:24 am
So jfw was right? You beter wad him.
:-\
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 15, 2010, 11:22:59 am
her? Never noticed that the initials were gender specific.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on April 15, 2010, 11:28:55 am
You not see that photo then? (http://ukbouldering.com/board/index.php/topic,9282.msg150029.html#msg150029)
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 15, 2010, 11:32:00 am
NSFW. Never bothered at home.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Duma on April 15, 2010, 12:04:42 pm
this one's SFW: jfw:
(http://www.keswicklakedistrict.co.uk/fellraces/ff08/images/IMG_1125_jpg.jpg)
was a while ago tho, and if you don't run...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: jfw on April 20, 2010, 01:43:58 pm
 :-[ blushing

On another statistical note - I know of a fair few climbing lasses (me included) who have dupuytrens. My cursory literary review indicates that Dupuytrens is even rarer in wimmin than in blokes.

My own hypothesis is that personally

1) I have a genetic disposition (dad had the normal op)

2) This has presented much earlier (in age terms mid 20s cf to dad 60s) due to the stresses on the hand of climbing

I have got some pretty pronounced bumps/cords going on.

On a plus note My dad had a successful op.

More  pertinently to climbers - Pod has also had the full op (maybe twice?) successfully.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 20, 2010, 02:13:40 pm
There were some pics on UKC of PODs op. Hope it won't get that far, looked grim!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Nick B on April 22, 2010, 01:41:56 pm
I've also got a peanut sized lump just beneath my ring finger, been there for about 3 months now. Started with just a pain in the area, then the pain went away and a lump quickly developed there. Specifically, I think training 3 finger drags on the beastmaker was the cause and I'm now avoiding this. Went to see a physio who's also a climber and he said that it shouldn't be anything to worry about unless it starts causing you a lot of pain and it might just go away with a bit of finger stretching and massaging.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on April 22, 2010, 02:53:34 pm
Peanut sized sounds big. Mine are more like lentils.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on April 22, 2010, 03:05:52 pm
I've also got a peanut sized lump just beneath my ring finger, been there for about 3 months now. Started with just a pain in the area, then the pain went away and a lump quickly developed there. Specifically, I think training 3 finger drags on the beastmaker was the cause and I'm now avoiding this. Went to see a physio who's also a climber and he said that it shouldn't be anything to worry about unless it starts causing you a lot of pain and it might just go away with a bit of finger stretching and massaging.

I got a ganglion once which looked a bit like this sounds, does it move with the tendon?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 22, 2010, 03:27:17 pm
Mine are more like lentils.

Green or brown? Split or whole. Where is the SCIENCE?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on April 22, 2010, 03:32:42 pm
I'd say large green, but really I can't say, I can only feel one side. It could be whole, could be split, just no way of knowing.

Its no peanut though, that's for sure.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on May 20, 2010, 02:26:24 am
Can I just ask for people that have this, is it perma sore? My LH palm (in line with little finger) has been sore for ages now. Door handles, jugs even a bar hurts it.

Do people deep friction it? Stretch? Wear a wacko jacko style orthotic glove to do exercises?

Should I bother going to see anybody or am I just going to get the same response as Timb, until I can't flatten my hand on a table its not worth it?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on May 20, 2010, 08:51:48 am
Goes through phases. I'm now pretty convinced taking vitamins aggravates it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 20, 2010, 08:55:31 am
Went to see a physio who's also a climber and he said that it shouldn't be anything to worry about unless it starts causing you a lot of pain and it might just go away with a bit of finger stretching and massaging.
This advice would suggest he doesn't know much about DC. I have never read of it going away with stretching and massage. On the contrary I've read that stretching and massage can have a negative effect as they stimulate inflamation. I'd suggest doing your own research before taking his (or my) advice.


I’ve had noticeable DC now for about ten years. I have it in both hands. LH will still sort of sit flat on a table, RH not a chance. Though I’ve passed this threshold for medical intervention I’m inclined to continue avoiding surgery for as long as possible, i.e. as long as the condition doesn’t have a major impact on my climbing. My reason being that ops can go wrong and even if they go well in most cases the condition re-emerges but this time with the added complication of post op scar tissue. Also the op can only be performed a limited number of times on the same site, typically twice, after that you put up with whatever happens, or in worst case scenario require amputation! Normally this isn’t too big an issue because it’s generally old men who have it done and they’re not going to be around long enough to go through more than two cycles of operation and regrowth
My cords and bumps are pretty bad but the contraction of fingers has remained ok for years. Not withstanding what I said above about stretching and massage, I think regular climbing, whilst probably being the trigger and driver of the DC also, perversely, keeps it in check. I’ve also cultivated the habit of lying on top of my bad hand when asleep, a kind of practical low faff alternative to night splinting, which may have helped.
As for pain, sometimes they hurt, sometimes intermittently, sometimes more constant, but more often than not there is no pain. New bumps hurt a fair bit while they develop, but eventually they become like painless scar tissue with tough skin on top. I hate having to slap for jugs, it can be very painful.
Climbing wise, my right hand is pretty useless for handjamming which can be frustrating and can turn familiar ‘easy’ soloes into horror shows. Flat palming on the rock is adversely affected, hence some mantels. It’s nigh on impossible to tell how much finger strength I loose as a result of the DC as it has developed over ten years, but I do think it has led to some weakening.
All in all, hardly a barrel of laughs, but not the end of the world or my climbing. There are many worse things you could be lumbered with and it is usually very very slow in it’s progress.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: dave on May 20, 2010, 09:13:23 am
I’ve also cultivated the habit of lying on top of my bad hand when asleep

You sure that definitely not so that when you wake up and punch the clown it feels like someone else is doing it?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on May 20, 2010, 09:54:30 am
How do you know that works Dave?

I only have one DC on my right hand, and the only time I notice any pain is when climbing on jugs that pressurise it directly. Otherwise never notice it when climbing, biking or anything else.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on May 20, 2010, 05:26:52 pm
I'd suggest doing your own research before taking his (or my) advice.

This is the problem I'm having, a lot of advice is Conflicting. I did find watching a video of the orthotic glove interesting given how its the exact opposite of what we all do a lot of in climbing.
Reading a lot, radiotherapy seems to have been very successful with halting the degeneration in a lot of people?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 21, 2010, 08:18:25 am
Yeah, radiotherapy sounds like the only way to nip it in the bud. It’s only effective if used at an early stage, which I guess is why it isn’t often used, as few people are likely to be sufficiently pro-active at this point.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: jfw on May 21, 2010, 09:14:25 am
i think when i read about radiation treatment - i came to the conclusion that there was a risk that in inhibiting scar tissue growth, the treatment was also inhibiting repair of connective tissues, and potentially other tissues that we as climbers like (i.e. tendons).

re massage / stretching : one of the sites had some anecdotal reference to (intense) massage with rounded wood  :o.  this could, as jonboy says instigate further scar tissue build up (in that we assume that the condition is an over response to micro trauma), but conversely (i was going to write on the other hand but it was too puntastic) massage can be a brilliant way of breaking up scar tissue and preventing it accumulating - I know Andy Brown had surgery for finger tendon injury which involved cutting up his palm - and has no scarring having massged it pretty religiously.

if jon boy says climbing helps - can we assume that using a greater range of hand movement than the average desk jockey helps retain that range.

maybe somewhere there is a balance between stimulating scar formation and breaking it up??
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on June 01, 2010, 08:53:40 pm
as another injury (nothing new here) is keeping me from climbing much I've noticed that my left hand (suspect of the duppywhatsit) doesn't hurt anywhere near as much even when doing DIY and wrestling with a screwdriver (as I did for most of the weekend).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: match on June 10, 2010, 08:25:16 pm
Had surgery on my left hand late last year to repair two severed tendons and various other bits and bobs I'd severed falling on broken glass. A couple of months ago I suddenly got a lump on the palm of that hand, on my ring finger fascia, nearly 2cm long now, plus a smaller one on my little finger and some puffiness around the top of the palm. Doc diagnosed DC, said there was no link to climbing or trauma.

Reading this thread, it appears likely that there is a link to climbing, albeit annecdotal at present, but with considerable weight of annecdote. My feeling is that the DC was triggered in some way by the trauma of the hand injury and subsequent surgery, someone else mentioned they felt this could be the case earlier in the thread. I have no problems with the other palm, or the left one before my accident, so repetitive micro-trauma prob not a trigger. Plus I don't train or crank hard enough  :(

I occasionally take vitamin and glucosamine/chronditin supplements, but only when I remember so about once a month if I'm honest. Think I'll stop even that now. No obvious inherited link, not sure if I can discount the possible influence of alcohol, but surely a contributary factor at worst.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on June 10, 2010, 08:59:06 pm
I recently found something that said there was some (not a lot) of research indicating that DC was linked to repeated trauma (minor tears) to the palma fascia.
I think its unlikely that this can't be linked to climbing in my case and a lot of others in this thread.

I've stopped the stretches and the tenderness in the palm is a lot better day to day. It still hurts on jugs and the day after climbing. I'm still not sure if its worth seeking somebody out and discussing radiotherapy at this early stage.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tedj234 on June 11, 2010, 10:30:40 am
Very interesting thread. Particularly as I'm writing a review related to Dupuytren's Disease at the moment. The most comprehensive epidemiological study I've read so far is:

J Hand Surg Eur Vol. 2007 Aug;32(4):400-6. Epub 2007 May 25.
An assessment of the effects of exposure to vibration, smoking, alcohol and diabetes on the prevalence of Dupuytren's disease in 97,537 miners.
Burke FD, Proud G, Lawson IJ, McGeoch KL, Miles JN.

They show no significant link between vibration and DD but this is clearly not the same stress as climbing etc.

I think the climbing DD  link is interesting and worthy of further investigation as is the development of DD following trauma.

With regard to treatment, which is more related to the research I have been doing, there are a couple of things that may be of interest (some have already been mentioned earlier). Recurrence/extension is almost inevitable 10-20years following surgery, the amount of tissue removed reduces the chance of recurrence but you enter into a trade-off here with greater risks of complications. Also, in my opinion, surgery is the definitive management for the disease, there doesn't seem to be really good evidence for any other approach.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on June 11, 2010, 02:53:46 pm
Any study would need to take great care to ensure it was comparing apples with apples. By that I mean that the type and intensity of hand stress varies vastly between climbers due to many factors including climber weight, volume of climbing, type/intensity of climbing, even competence and the ‘style’ of climbing displayed by an individual. It would probably take a lot of thought and the help of knowledgeable climbers to devise a meaningful methodology.
Regards surgery as the definitive treatment. Don’t you think, given the recurrence rate/timeframe, which can be significantly faster especially in younger patients, that NA is a good idea as a way of delaying the need for surgery for as long as possible? After all, the complication risk of NA compared to surgery is minimal, it’s a fast cheap procedure, the recovery time is very small and although recurrence is quicker than for surgery it’s a much more repeatable process which doesn’t preclude surgery in the future. A botched op or a bad reaction to surgery could put and end to your climbing in a stroke. Also worth considering is the fact that for climbers the cosmetic outcome is of vastly less import than the functional outcome (restored range without loss of strength), which is perhaps the opposite of what joe public wants.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Robsons on June 13, 2010, 09:36:53 am
This painful lump/callused lump seems to be in line with the ring finger and I think I'm right in saying on everyones' palms?
My dad (who climbed a lot back in the 70s and again now) has this peanut size lump under the same finger...his has hardened??

I however, seem to have something different???
I have been resting for the last week with bad elbows and two torn pulleys in the fingers (rh - second finger, lh ring finger).
Yesterday I noticed that there is a pain in my actual hand however, a bruised feeling. This morning I have looked more closely (deciding whether I can climb today or just belay the ol' man) and see that when I close my index finger, a lump appears on the BACK of my hand?? (2/3 of the way down)
It is painful to touch and to clench a fist???
HELP??!

 :'(
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on June 13, 2010, 10:12:44 am
NHS Direct (http://www.nhsdirect.nhs.uk/)

Sounds like injury rather than Dupuytren's (http://en.wikipedia.org/wiki/Dupuytren%27s_contracture).  As it hurts go and see a doctor/physiotherapist for a proper diagnosis and treatment.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Robsons on June 16, 2010, 10:54:30 am
So I went to the Dr and he said it was most likely a ganglion (I see Paul B has this too).

He agreed that there is a lot of conflicting information on the web, stating that hospitals etc always suggest opperation. My Dr was refreshingly (albeit slightly worryingly) non chalant about it all - saying that; he had had one on his wrist that he just massaged and after time it went away.

I said that I climbed 3-5 times a week and he said that I should be fine to continue - it will be slightly painful, but you should be able to put up with it etc...
Having said that, he went on to say if it gets worse - more painful, increases in size etc...then to go back.

I was pleased with this...went climbing on it last night, and it did hurt, felt more pumped (linked??) but was fine to do lapping/4x4s on 6a-6b+...

Tested it on the finger board on the smallest crimps (not beastmaker), and was fine!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on June 16, 2010, 11:50:45 am
So I went to the Dr and he said it was most likely a ganglion (I see Paul B had this too).

I pretty much got the same advice and it seemed to be correct.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on June 16, 2010, 12:00:24 pm
he went on to say if it gets worse - more painful, increases in size etc...then to go back.

Probably the most frequently used line of advice by GPs!  :lol:
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Robsons on June 16, 2010, 02:14:49 pm
haha - true...let's hope I don't have to act upon it! 
Title: Re: Rock climbing link to Dupuytren's disease
Post by: JamesD on June 16, 2010, 06:08:21 pm
Hit it with a book, thats what my gran said, she did it to hers years ago and it never came back apparently  :)
Title: Re: Rock climbing link to Dupuytren's disease
Post by: webbo on June 17, 2010, 12:45:19 pm
not any old book it needs to be a king james bible.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on June 21, 2010, 12:00:32 pm
Hit it with a book, thats what my gran said, she did it to hers years ago and it never came back apparently  :)

That's a ganglion. Different lump completely. I think the Good News version will work as well. Climbers can use Yorkshire Grit Guide.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on June 21, 2010, 12:51:21 pm
Though the Lancashire guide would be better.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on October 14, 2010, 05:09:58 pm
Has anybody had any experience of using DMSO on a contracture:

http://www.dupuytrens-contracture.com/dupuytrens-treatment-DMSO.html (http://www.dupuytrens-contracture.com/dupuytrens-treatment-DMSO.html)

Dylog pointed me at it after finding it useful on a number of other things. A bit of reading suggests the DMSO and MSM might be darn good on scar tissue.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on October 14, 2010, 06:25:10 pm
There's only a couple of studeis looking at it, mostly small and old- it hasn't been proven to be beneficial.  Not much help to you I'm afraid, but that's the SCIENCE (or lack of it).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: sidewinder on July 04, 2011, 01:07:13 pm
Posting on this thread as it seems the newest of the three?

It seems I have been initiated to the UKB/DC club, I am guessing the secret handshake is maybe a fist tag (I hope not because I find them irritating)?  I had suspicions that I have been developing it for a while (~year) and one of the Hallamshire physios said he was pretty sure it was indeed DC during a free consultation at Cliffhanger, cord like line of thickening, in the palm along the line of my little finger tendon on both hands.  No contracture yet and only occasional tenderness after aggravation.

I find the information available somewhat frustrating to say the least.  Stretching/massage may help or hinder (I tend to stretch and massage it a bit, but not to the point of aggravating it).  The new drug looks a bit dodge if you are a climber, pretty sure I don't want anything injected into my hands that eats away at tendons.

I am tempted by the radiotherapy option, especially due to the line here (http://www.dupuytrens.co.uk/styled-6/)

Quote
If you are somewhat older and develop a nodule then probably you will not develop serious disease and radiotherapy is not worthwhile. Conversely if you are 25 and already have nodules starting I would consider radiotherapy almost mandatory.

As a 25 year old with nodules starting it makes me think it might be worthwhile being proactive.  Has anyone actually been to see anyone (a hand specialist) about their Dupuytren's?  I am tempted to try and get a referral to the guy who set up the page I linked as he obviously has a pretty strong interest in it and Derby is pretty convenient from Nottingham.  Coincidentally a friend has seen this guy before about his badly broken wrist and described him as being a typical consultant (a bit arrogant etc.), but one who probably knew his stuff, any further info would be welcome, I am a little wary as he seems to be somewhat involved and very keen on the drug option so I expect him to be peddling that.

I might even try and set up a bit on the ukb wiki to collate some of the info in the many threads and the internet, be interesting to see if we can get any consensus on what, as a climber seems to be the best way to manage it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Clart on April 21, 2012, 10:44:50 am
Just read through this thread as have noticed a tell tale lump on right-hand. I think I can pin it down to an undercut guppy hold on a problem I was trying, felt the fascia strain as I pulled on. Felt some expected mild discomfort for a while after and just assumed bruising. This happened just over a week ago. 2 days ago I felt the hand and noticed a slight lump just south of ring and little pinky. Have 3 climbing friends with varying degrees of DC and they seemed to think it was early onset of DC. Thought I'd report it here for info. Anyone had any further results with treatment? For the record, one friend who had acute DC had the op and it didn't go well. Has put the other 2 of having it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tregiffian on April 21, 2012, 02:20:19 pm
Diagnosed with pinky DC by an Army medic at the top of Economist`s Climb at Pordenack C. 2001 age 58. He mentioned Vikings and Margaret Thatcher. Very lumpy below ring finger but still 95% useable after a decade of mainly benign neglect. My ex-marines pal has had z-plasty on his middle finger and is right as rain.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 22, 2012, 01:39:33 pm
I had the needle op at the end Feb this year. Had pretty bad contracture in back two fingers on both hands. The op took 45 mins, I now have flat hands again, though obviously still lumpy with DC tissue. Was climbing again within four days. No doubt I will have to have repeat treatments down the line but so far so good. The operation was very low stress and recovery time is minimal. I would recommend it fully to anyone getting to the point where something needs doing. The traditional open hand surgery procedure is way over the top as a first line treatment IMO. Have the needle, if it doesn't last have it done again, if you get sick of this then and only then consider the Z-plasty. Beware uninformed GPs railroading you into the Z-plasty, most don't know any better.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 22, 2012, 01:44:08 pm
There aren't that many practitioners doing the needle op however. Best bet is to get a private consultancy with this guy - http://www.dupuytrens.co.uk/ (http://www.dupuytrens.co.uk/) , between  him and your GP you can then get put on his NHS waiting list.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 23, 2012, 09:19:35 am
anyone getting to the point where something needs doing.

Out of interest, what was this point for you? My pinky finger one is about 1" long still, not grown in a couple of years.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: GCW on April 23, 2012, 09:57:37 am
One important factor is the resting positions of joints.  The MCPJs taughtest position is in flexion so you can leave these fixed flexion deformities longer, as they corrext better due to lack of capsular tightening.  The PIPJs and DIPJs position of greatest caspular tightness is in full extension, so if you leave a flexion deformity long enough you end up with capsular tightening that may be difficult to correct.

At the end of the day, it's a balance between how much trouble you are getting from the contracture against any risks for correction.

I'll be interested to see more extended results for Xiapex.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 23, 2012, 10:50:58 am
anyone getting to the point where something needs doing.

Out of interest, what was this point for you? My pinky finger one is about 1" long still, not grown in a couple of years.
It’s the level of contracture that I’d be watching. The DC tissue/cords without contracture wouldn’t benefit from needle treatment and you actually need some level of contracture in order for the needle procedure to be effective. Can you still put your palm flat down on a table top? If so you have no significant contracture. My little fingers were both at about 45 degrees to the palm at best and ring fingers about 30. They had been pretty bad for a while, probably hadn’t been able to put palms flat on a table top for maybe three years.
 The two factors to consider are: how functionally disabling is your DC and how long do you dare leave your joints in a constrained configuration (as GCW says, there is a risk of impeded recover if a joint is in a contracted state for a prolonged time). For me the functionality issue mostly boiled down to how much my climbing was hampered. Prior to the op I couldn’t hand jam, palm off slopers (makes toping out tricky!), my crimp was starting to feel noticeably weakened and I was getting wrist pains which I attributed to having to use my hand in a distorted configuration on many types of holds. I dare say I was pushing the risk of unrecoverable damage by leaving the op as late as I did, but I’m glad to say they have recovered very well.
Part of the reason I left it late was that there are obviously risks (tendon/nerve damage, infection, or aggravation of the condition leading to general worsening of cantracture) to any treatment option which could conceivably have ended my climbing, so I didn’t want to have the op early while I could still climb relatively unhindered.


PS. Early stage DC (as yours sounds like) would probably benefit from radiotherapy. This might stop the condition in it's tracks before it becomes a problem. Unfortunately this is not available on the NHS and would cost I was told approx £3000.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 23, 2012, 11:07:25 am
I'll be interested to see more extended results for Xiapex.

Me too. When I went to see the guy who carried out the needle op he recommended that I have the Xiapex treatment. After going away and thinking about it and looking into it further I decided I was not keen and told him I’d prefer the needle.
Rather than try to rehash my reasons for this here's an excerpt from the letter I wrote requesting NA rather than Xiapex.

Quote
Dear Dr Bainbridge,

 Thank you for the recent consultation. It was good to talk to you regarding my Dupuytrens and I appreciate your recommendations on treatment options.
 At the time of the consultation I had was not aware that Xiapex was an available treatment in the UK and had not considered it closely as an option. Subsequent to your recommendations I have had time to look into it more closely.
 For reasons I’ve outlined here I would feel more comfortable opting for Needle Aponeurotomy as a 1st stage treatment.
•   The risk to nearby tendons appears to me to be greater with Xiapex than with Needle Aponeurotomy. As someone involved in relatively high difficulty rock climbing the stresses I put through finger tendons are well beyond those generated by everyday use and I fear that however comprehensively Xiapex has have been trialled it will not have been used on many people who put such extreme stresses on their finger tendons (i.e. higher standard rock climbers). A ruptured finger tendon would be a devastating blow to me and as such I would rather accept the likelihood of other problems associated with NA (e.g faster recurrence) rather than take this particular risk.
•   The possible advantage of Xiapex over NA is an increase in the time between recurrence and hence the need for repeat treatment. I haven’t looked into this exhaustively but have not found any significant claim for this in the manufacturer’s literature. I’m guessing it is too early in its use to carry out a study to assess this. So I am not entirely confident I would gain in this respect. Also this advantage would be offset somewhat by a longer convalescence (I think you mentioned a minimum of a month off climbing per hand), the need for two visits per procedure and more side effects. I think on balance at this stage I would rather risk more frequent treatments with NA rather than less frequent but more disruptive treatments with Xiapex.
•   Opting for NA now does not appear to rule out using Xiapex later if the NA does not work out. By the time repeat treatment is required I am hopeful that Xiapex will have been in use for some time in the UK and there will be more comprehensive information about it more widely available.

 Also what I didn't mention in the letter was that I was not comfortable being one of the first few people he would have been carrying out a new treatment on. Even the best practicioners are likely to make a few errors while developing a new skill.
It's certainly something I'll look into though next time I need my hands fixing.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 23, 2012, 11:21:36 am
Can you still put your palm flat down on a table top? If so you have no significant contracture. My little fingers were both at about 45 degrees to the palm at best and ring fingers about 30. They had been pretty bad for a while, probably hadn’t been able to put palms flat on a table top for maybe three years.
.....
Early stage DC (as yours sounds like) would probably benefit from radiotherapy. This might stop the condition in it's tracks before it becomes a problem. Unfortunately this is not available on the NHS and would cost I was told approx £3000.

Mine is nowhere near a point where I need to do anything about it - only about an inch on my right hand, with only a dimple like deformation of skin. I was just asking from a point of reference.

You are probably right on the radiotherapy, but unfortunately i don't have 3K to spare, and I don't think our company private healthcare will stump up for it.

As an aside, the only time I have noticed any progressive increase in growth of mie was over a period when I was taking Glucosamine regularly. It stopped not long afterwards. Now I'm sure some statistical smartarse will be along to say that it proves no link, but I'm just saying......
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 23, 2012, 11:36:01 am
I've read that Glucomsamine agravates DC. I used to take it and then decided to stop. Hard to say what effect it had on me.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: sidewinder on April 23, 2012, 11:38:57 am
I am like Chris most probably in the very early stages, in my case the lumps are barely visible and I only noticed because of the discomfort I get if I try to cup jugs (serves me right for puntering around on jugs!), physio and gp confirm probably Dupuytrens + my granddad had it!  Veen trying to get a appointment with the Bainbridge guy for confirmation and to discuss the radiotherapy option but it seems to be taking some time, I need to chase this up, especially as he is just in Derby and I in Nottingham.

Am very interested in the radiotherapy option, don't really have 3k to spare, but think I would probably try and find it if the opinion is that it will probably stop/reverse the condition, as some of the literature seems to suggest.  As with the Xiaflex option I am a bit worried as to how much the radiotherapy option might influence general tendon strength?  Also 3k that I don't have is definitely a lot to spend if it ends up not helping!  From what I have read, even if you have private medical insurance non of the current providers currently cover it.

Pleased to hear the NA procedure went well Bonjoy amazed the downtime was so short, I would of imagined the needle puncture holes would be too sore to allow climbing for a bit longer than that,  [internet stalking moment] saw you (I think) at Raven Tor last week and I remember thinking it didn't seem long since you said you had had the op[\internet stalking moment] having read up NA was the option I would currently go for once mine gets bad, though hopefully it won't/they will have developed something new by then!

It would be nice if there was any info on possible ways to hold it off.  I tend to lightly massage and stretch mine, as well as avoiding jugs, irritatingly some sources seem to suggest lots of stretching etc. whereas others seem to suggest too much stretching/massage can aggravate it and make it develop faster, hence my softly softly approach.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 23, 2012, 12:03:43 pm
Because the progression is very erratic and unpredictable, coming and going without obvious pattern over a period of years, I'd imagine it would be v hard to distinguish what things helped/hindered
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tregiffian on May 16, 2012, 09:08:00 am
Saw the senior, long served, hand consultant in Cornwall. Not prepared to put the needle into my pinky DD lumps asserting that folk tended to be back in a few months with the relevant finger crooking in. If it ain`broke.......... He had no truck with links to climbing or manual work and suggested that the Celts might have blame to shoulder though their gene pool could have been muddied by marauding Viking pillagers.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on May 16, 2012, 09:32:52 am
....Celts might have blame to shoulder though their gene pool could have been muddied by marauding Viking pillagers.

Online Mendelian Inheritance in Man : Dupuytren Contracture (http://omim.org/entry/126900) < Summary of what is known about the genetics (inheritance pattern shows incomplete penetrance, at one locus on chromosome 16, which means that not everyone who caries the alleles/genotypes will develop the phenotype of contracture).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 16, 2012, 11:07:21 am
Saw the senior, long served, hand consultant in Cornwall. Not prepared to put the needle into my pinky DD lumps asserting that folk tended to be back in a few months with the relevant finger crooking in. If it ain`broke.......... He had no truck with links to climbing or manual work and suggested that the Celts might have blame to shoulder though their gene pool could have been muddied by marauding Viking pillagers.
Same old, same old. As I've said before, it might be a coincidence that the young climbers I come across seem to have a vastly higher incidence of DC expression than the general population, or it might be (if you really want to be a pedant) possible that the gene for DC is linked to a gene which makes people want to become a rock climber, but it seems more likely to me that climbing brings on DC rather than vica versa or that there is no connection. But I see no reason why a hand specialist who doesn't come across lots of climbers, in the absence of any major studies on the subject, would draw the same conclusions and I'm not surprised when they don't.
If your DC is still at the stage of lumps rather than cords then he is right, sticking needles in them would undoubtedly do more harm than good. Your choices are radiotherapy or wait for contracture and then decide on preferred surgical option.
I can only go on my own experience and the experience of others I've met who have had both NA and/or open surgery. Neither myself or the other chap who had NA have suffered the rapid recurrence your doc says 'tended' to happen. We had no lengthy recovery period and were climbing again within days. This is in contrast to folk I know who have had open surgery and were out of action for months. One chap who had open surgery on one hand and NA on the other said he was way more satisfied with the NA in all respects and wished he'd known about it when he had his first hand done. I'm not claiming this proves anything.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on May 16, 2012, 11:17:26 am
Man with sausage collection foils terrorist plot (http://www.significancemagazine.org/details/webexclusive/2047633/Man-with-Sausage-Collection-Foils-Terrorist-Plot.html)

Not at all suggesting that there isn't a link between DC & climbing, just that...

(http://imgs.xkcd.com/comics/correlation.png)



If anyone is seeing a consultant about DC why not ask and/or encourage them to investigate the possibility of a causal link between climbing and DC?  I know a plastic surgeon in Manchester I used to work with who was interested in looking into the genetics of DC about eight or nine years ago and could put people in touch.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 16, 2012, 11:40:36 am
Yes thanks for that patronising statement of the obvious.
I didn't claim causation, just said it seemed the most plausible explaination from my limited experience. Do I really have to do a longitudinal study any time I want to make a qualified statement?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on May 16, 2012, 12:02:05 pm
It wasn't meant to be patronising in the slightest which is why I used a cartoon to convey the obvious in a convivial manner.

Having read some of the literature on DC a number of years ago increased physical activity using the hands such as manual labour (albeit not specifically climbing) shows no higher incidence of DC.  <obvious>This is why yourself and others get the responses noted.  Without further investigations this isn't going to change for other climbers who find themselves in the same situation.</obvious>

I genuinely think that its worth investigating further, and most of the NIHR funding streams like to see public & patient involvement (or PPI, the NHS love acronyms) in research proposals (in fact its one of the criteria that without which applications often aren't invited to the full proposal stage, particularly the Research for Patient Benefit stream, although thats inappropriate for this stage).  So given yourself and others are in contact with specialists who are in a position to undertake the early stages of investigating the higher incidence that you are observing it would seem the perfect opportunity to encourage such research (although I do appreciate that not all consultants care for undertaking research, nor is everyone who is afflicted by a particular condition interested in being involved in research into the aetiology of the disease).  <obvious>It might not benefit yourselves, but future generations might be grateful and it would further the depth of knowledge and understanding in the medical community about DC rather than being observations noted on forums.</obvious>
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 16, 2012, 12:48:34 pm
Fair enough, sorry about the snippy reply in that case.

I did talk about it briefly with the specialist I saw and told him to expect a glut of climbers in the next few years.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on May 16, 2012, 01:04:55 pm
Come on Bonjoy, clearly it's all very <obvious>.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 16, 2012, 01:24:23 pm
Obviously
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tregiffian on May 16, 2012, 04:04:15 pm
Saw the senior hand man in Cornwall today. Wouldn`t put the needle into my pinkie lumps saying I would likely be back  with the fingers crooking in after a matter of months. No sympathy with the Glucosamine link and blamed the Celts while admitting that their gene pool could have been muddied by Viking pillagers.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on May 16, 2012, 07:23:46 pm
Best say that again, didn't hear you the first two times.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tregiffian on May 17, 2012, 11:17:26 am
As the bishop said "Once never enough."
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on November 12, 2012, 11:39:00 am
After 3 weeks of pocket pulling my contractures seem to be the most aggravated they've been for about 3 years. Coincidentally I bumped into a friend who has just had surgery performed on one of his hands and supposedly the practitioner was saying that the injection treatment was due to be licensed in the UK within the next 6 months.

This involves an injection, 24 hr wait and then the hand is clamped in a stretched position and the scar tissue is broken-down through massage. Can anyone shed any light on whether this is accurate or your hearsay?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on November 12, 2012, 02:02:40 pm
The doc whole performed my needle op offered this treatment as his first choice for me but I chose to go with the needle op for various reasons. Google Xiapex if you want to know more about it. Basically you are injected with an enzyme which breaks down collagen, left for a bit and then manipulated to break the weakened cords. The upside is that the enzyme does not attack nerve tissue so the risk of nerve damage is low. I chose not to have it for several reasons. It is very much in the early stages of use in the UK and I was not confident practitioners would have had enough practice to be fully competent. Tendons are made of collagen and very close to DC cords, you do the math. In most people I doubt this would be a problem as mild damage to tendons would not be noticed, for a climber it could be a very different matter, I'd rather some other climber was the guinea pig. Testimonials on US websites (where the procedure has been used for years) were very mixed, with quite a lot of folk reporting some pretty distressing side effects. The recovery time is a lot longer than for NA. Only one hand can be treated at a time (I had both hands NA'd on same day). From what I read it didn't seem to last a whole lot longer than NA. All in all I'm not totally convinced the whole treatment isn't just a clever way for drug companies to make some money (apparently it's very expensive stuff to manufacture). I don't think the risks outway the benefits for climbers, at least not until I hear otherwise from a few climbers who've had it done.

P.S. My hands are still totally flat and free of 'activity' 9 months on from NA.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on November 12, 2012, 02:22:32 pm
ta yoot! Mine seemed to have stabilised but obviously don't like being loaded in sets of two-fingers.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: petarar on November 25, 2012, 08:20:49 am
I spoke to Dr Schoffl (world expert on climbing injuries) at the latest BMC medical conference about dupytrens in climbers and he confirmed what i have found in clinical practice. There does seem to be a link between dupytrens and climbing but no scientific evidence to support  this. However in climbers the condition often does not progress and is best left alone. The reason young non climbers with dupytrens go for aggressive invasive treatment is it tends to progress quickly to a stage where they can not open their hand
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tregiffian on November 25, 2012, 09:08:20 am
This chimes with my experience.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on November 25, 2012, 10:53:58 am
Most of the climbers I've met with DC have only had it for a relatively few years (less than 10), i.e. it is too early to say that the DC does not progress. DC takes a long time to become problematic.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: nik at work on December 08, 2012, 09:38:55 am
I haven't got DC, and haven't read this thread. But yesterday I was listening to Radio 4 and there was a little obit piece for Dave Brubeck, jazz popularizing pianist, who has just died. (Stick with me here this will become relevant soon...)
Anyway as part of the obit they played an interview from a few years ago where he was discussing his DC. He was considering the surgical option but was not massively keen then he spoke to some non-surgical specialist and he was advised to take B6 in MASSIVE doses.
From what I remember of the interview he was saying that the specialist said that a normal dose of B6 would be about 200mg a day but he gave his patients 40,000mg!!! Anyway apparently Brubeck tried this and he's had no problems since.
Now from what I hazzily remember about vitamin dosing 200mg of B6 sounds a bit high to me so maybe the guy was a bit confused about the actual numbers of the dosing?? But he seemed quite convinced by the principle. Might be worth a bit of research??
Like I say I don't have DC, and I was only half listening to the radio, and I haven't read this thread through (this may well be old news that you all covered on page one). But when I heard his comments I immediately thought of this thread and thought I'd mention it here. I'm not suggesting everyone should start mainlining B6, but it might be worth seeing if there is any evidence base (beyond second hand annecdotal) about this strategy if you're wary of surgery.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on December 10, 2012, 10:52:07 am
So we need to find the old Rockfax bouldering guide, and get a massive dose of B6s?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Stewart on September 18, 2013, 02:30:33 pm
Recently been diagnosed with this as well  :wavecry:

Hadn't been causing too much trouble over the summer, been outside a lot and it's never quite as intense. However, after a full-on indoor session yesterday my hand is really aching, particularly around the affected area on the palm. Is this normal?

Don't suppose anyone has any good news stories or suggestions since it was last discussed on here 10 months ago?

Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on September 18, 2013, 03:26:08 pm
That sounds normal from my experience. It comes and goes. Sometimes it wont change for months, other times it seems to change rapidly. Overall it's a very slow process though. I suspect there are things which trigger bad episodes but I can never pin down what they are for me, though I do think cutting out all dietary supplements may have helped (used to take Glucosamine for joints and high does of vit C for colds) in the past.
As for good news, i had the needle op on both hands in Feb 2012, at which point my hands were both really bad. I was climbing again in less than a week. My hands are still flat and the rate of DC development has been notably slow since having the op, I think this is because once you have contracture you end up overstretching the tissue every time you climb, hence a feedback effect - contracture causes more contracture. Once the op releases the tension in the area you don't get major agravation every time you climb. I've had next to no pain from my DC since op either.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on September 18, 2013, 03:54:14 pm
Mine hurts a bit when climbing on steep jugs (there's a moral there!) otherwise I've learned to climb so as not to load the affected area with the edge of a hold.

It's not had any development since the sudden rapid growth i noticed while taking Glucosamine regularly. I still take multivitamins (when i remember).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Stewart on September 18, 2013, 05:30:47 pm
Chris, you're probably right. Outdoors there are hardly any holds that really dig into your palms, while every other problem indoors has a dyno to a jug for the last move so that probably explains why it's particularly bad today.

Bonjoy, glad to hear you've got a way of coping with it. I found the link on one of your earlier posts which is probably the best source of info I've seen, especially for NA which I'll repost here

http://www.dupuytrens.co.uk/styled-4/ (http://www.dupuytrens.co.uk/styled-4/)

I can still nearly straighten my fingers so don't know if it's too early to go down this route. Probably. Might see if i can find a hand specialist north of the border that can advise.

At least it's a good excuse 'i probably would have flashed that but my dupuytrens is acting up today' or 'sorry dear, i would love to go and get you a cup of tea but my dupuytrens is really sore today'

Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on September 18, 2013, 06:38:12 pm
I suspect there are things which trigger bad episodes but I can never pin down what they are for me

I've noticed recently that time spent using ascenders and hauling (pulling the slack rope through a 2:1) really aggravates mine to the point where after a few days my left palm (visible contracture) was very sore. Frustratingly this behaviour has led to pains in the same position in my right palm which as of yet has no visible signs of contracture (I guess it's inevitable).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on September 18, 2013, 06:43:35 pm
see if i can find a hand specialist north of the border that can advise.

Be surprised if there is, might need to travel for that one, should it come to it.
Title: Rock climbing link to Dupuytren's disease
Post by: Oldmanmatt on September 18, 2013, 07:24:02 pm
And I have to say, mine hasn't advanced since I posted on this thread last.

I think I must be luck to have it primarily in my left (non-writing) hand; so it's rarely agrivated.

Does anyone know if it is guaranteed to progress or does it sometime stabilise?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Fiend on March 20, 2014, 11:12:56 am
Hi! Can I join the club? I now have a small lump on my left palm beneath the little finger. Slightly tender to touch but not to climb on and no contracture at all (yet?).

Is there anything I can do at this stage to slow further progression?

I did read through most of this thread but half the links were broken and then slackline started waffling on about statistics and proof and I lost the will to live after that. I take sporadic vitamin supplements, not glucosamine tho, and living in Glasgow I get fuck all vitamin D of course...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on March 20, 2014, 11:33:33 am
Don't think there's much you can do to slow progress. Mine was just a lump for about 10 years, gre while I was taking GSS, not grown since. Stay off the jugs, don't irritate it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on March 20, 2014, 11:38:24 am
Hi! Can I join the club? I now have a small lump on my left palm beneath the little finger. Slightly tender to touch but not to climb on and no contracture at all (yet?).

Is there anything I can do at this stage to slow further progression?

I did read through most of this thread but half the links were broken and then slackline started waffling on about statistics and proof and I lost the will to live after that. I take sporadic vitamin supplements, not glucosamine tho, and living in Glasgow I get fuck all vitamin D of course...

Get it diagnosed by a professional.

Read what you can be bothered to on the  evidence of its aetiology (http://scholar.google.co.uk/scholar?hl=en&as_sdt=0,5&q=climbing+dupuytren) and effective treatments (http://scholar.google.co.uk/scholar?q=dupuytren+treatment&btnG=&hl=en&as_sdt=0%2C5).



As a quick straw poll, how many of those who have been clinically diagnosed as having a contracture have a relative with Dupuytren's and what sort of relative (NB only include those who you actually share genetics with)?


Title: Re: Rock climbing link to Dupuytren's disease
Post by: Stewart on March 20, 2014, 12:51:44 pm
No genetic connection for me.

As aside, mine has been pretty sore, the lump seems to have been pressing into something which is causing the pain rather than being sore itself. Seen a specialist in glasgow who is not keen on the aponeurosis technique but gave me a steroid injection to reduce swelling and pain in the short term. It's not really had any effect though.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on March 20, 2014, 12:56:43 pm
Hi! Can I join the club? I now have a small lump on my left palm beneath the little finger. Slightly tender to touch but not to climb on and no contracture at all (yet?).

Is there anything I can do at this stage to slow further progression?

I did read through most of this thread but half the links were broken and then slackline started waffling on about statistics and proof and I lost the will to live after that. I take sporadic vitamin supplements, not glucosamine tho, and living in Glasgow I get fuck all vitamin D of course...
Radiotherapy is supposed to be effective at stopping early signs from progressing
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on February 08, 2015, 10:29:08 am
What are the odds of a big study into a climbing link to DC?

N = 498...

A J Logan, G Mason, J Dias, N Makwana (2005) Can rock climbing lead to Dupuytren’s disease? Br J Sports Med 39:639-644 doi:10.1136/bjsm.2004.015792 (http://bjsm.bmj.com/content/39/9/639.full) Alternative PDF (http://www.pofableau.com/documents/dupuytren.pdf)

Note the section on sources of bias with 60% of contractures being self-reported and not clinically diagnosed/confirmed.  The authors note the potential for bias in respondents too.

Cites previous work for those interested (PDFs can probably be found in the normal way, i.e. Google Scholar).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: haydn jones on April 15, 2015, 01:14:13 am
Pretty sure i've got the the first sign of a nodule on my palm ring finger tendon, sometimes hurts when i grabobjects like  poles and door handles ect or if i just catch it wrong, but gives me no pain when i crimp ect.

theres a a distinct lump there that i've had for a couple of months and one thing i've noticed is that the skin on the lump does not sweat at all, anyone else noticed this?

anyway, I know its a slow disease but how slow is slow, will it be 10years before i have to get "the snip" or 50? ect
or does it change from person to person
Title: Re: Rock climbing link to Dupuytren's disease
Post by: haydn jones on April 15, 2015, 01:19:43 am
just reading through the comments i saw SA chris also had a callous form on top of his lump, interesting, i wonder why that happens...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: galpinos on April 15, 2015, 11:57:30 am
anyway, I know its a slow disease but how slow is slow, will it be 10years before i have to get "the snip" or 50? ect
or does it change from person to person

Since first noticing it 10 years ago mine has got no worse really, however I climb neither as hard nor as often as you.

I do have it in the family though (bad case in my father thought to be made worse by bowling at the time....)
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on April 15, 2015, 12:02:47 pm
Similar, ten years little change. Get in the habit of massaging it occasionally and stretching your fingers back. I think BJ's got considerably worse over the same period, though it started when he was younger.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 15, 2015, 12:29:43 pm
Yeah, it's massively variable between individuals. I know a few other climbers who have got to the Op stage within approx ten years of getting first signs, but I know many more than that who have been luckier and had much slower development.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: haydn jones on April 15, 2015, 12:54:59 pm
so is massage and stretching everyday (already do this from just doing my climbing rehab excercises) actually meant to stave off the contracture?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on April 15, 2015, 01:01:29 pm
Go and see a hand specialist.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: duncan on April 15, 2015, 01:28:01 pm
just reading through the comments i saw SA chris also had a callous form on top of his lump, interesting, i wonder why that happens...

A callous is a protective adaptation to abrasion and mechanical stress. A harder cord in the fascia would increase the mechanical stress on the overlying skin.

so is massage and stretching everyday (already do this from just doing my climbing rehab excercises) actually meant to stave off the contracture?

Evidence - which I don't have to hand (!) - is that gentle continuous stretching from a splint doesn't make any difference. However studies had small numbers of participants and were of short duration so this finding was almost inevitable. I doubt if doing gentle stretches and self-massage gently will do any harm.

What slackers said of course.

Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on April 15, 2015, 02:13:35 pm
I bet all you'll get from a hand specialist (assuming you can get a referral) is 'Hmmm, we'll have to wait and see. Come back if it gets worse.'
Title: Re: Rock climbing link to Dupuytren's disease
Post by: fried on April 15, 2015, 03:16:36 pm
I thought I'd read that massaging isn't recommended, I'll try and find some links.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on April 15, 2015, 03:41:14 pm
My physio reckoned it wouldn't do any harm, and might help. I don't go mad, just when it irritates me.

The only thing that seem to affect it is Vitamin C intake. Hit the berocca after a cold and it flares up.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Lund on April 15, 2015, 05:31:43 pm
Hit the berocca after a cold and it flares up.

No point you doing that.

http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD000980.pub4/abstract
Title: Re: Rock climbing link to Dupuytren's disease
Post by: petejh on April 15, 2015, 05:56:45 pm
I've had 3 lumps on the pinky and ring tendons on the RH and 1 on the LH for over ten years and which seem to have remained stable. Occasionally they tighten up and I massage them hard with the knuckles. One of the treatments is breaking them up with a big fuck-off needle so I figure massaging them hard can't do any more harm than that.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on April 16, 2015, 09:33:19 am
I've had what I believe to be a contracture in my LH for about 7-8 years now and since the initial pain and settling down period it has been fairly stable and without issue.

However, I'm now developing the same in my RH and it hasn't yet settled and is causing quite a lot of pain and general weakness in the back half of my hand (shaking hands for instance is very painful). I'm also finding that it seems to be affecting the joint nearest my hand on my ring finger which feels constantly under tension.

My LH issues were worst after my Euro climbing trip, pocketed venues seemed to really aggravate things and my RH issues first appeared after a stint of pocket climbing.

I try not to massage or stretch the nodules as that seemed to slow the stabilisation in my LH (he says with no benchmark), I'm assuming climbing regularly provides enough breakdown/stretching.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on April 16, 2015, 09:41:08 am
Hit the berocca after a cold and it flares up.

No point you doing that.

http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD000980.pub4/abstract


Doesn't look like you read that very well:

Quote
The failure of vitamin C supplementation to reduce the incidence of colds in the general population indicates that routine vitamin C supplementation is not justified, yet vitamin C may be useful for people exposed to brief periods of severe physical exercise. Regular supplementation trials have shown that vitamin C reduces the duration of colds, but this was not replicated in the few therapeutic trials that have been carried out. Nevertheless, given the consistent effect of vitamin C on the duration and severity of colds in the regular supplementation studies, and the low cost and safety, it may be worthwhile for common cold patients to test on an individual basis whether therapeutic vitamin C is beneficial for them. Further therapeutic RCTs are warranted.

Bearing in mind I don't eat any fruit or veg.

Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on April 16, 2015, 09:54:30 am
I bet all you'll get from a hand specialist (assuming you can get a referral) is 'Hmmm, we'll have to wait and see. Come back if it gets worse.'

Personally I'd rather that (with correct monitoring) than an Internet diagnosis.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 16, 2015, 11:44:26 am
Each to their own, but I think your position looks rather kneejerk for someone who believes in evidence based behaviour. On the one hand you have a mixed bag of ‘hand experts’ of varying levels of experience, many/most of whom outside of Sheffield will most usually have come across DC in elderly white men and alchoholics. Read around on the subject and it looks like a large proportion of  the ‘experts’ will channel you toward open hand surgery without pointing out or discussing the pros/cons of the (IMO better) needle op. I tend to think this is because they generally deal with elderly sufferers so aren’t used to dealing with people who will have to manage this condition for a fair proportion of their lifespan rather than a decade or two at the end. On the other hand you have a mixed bag of climbers with varying levels of experience of the condition the therapies and how these relate to the hand intensive activity of rock climbing; many of whom are quite bright and have looked into the subject at length and consulted with ‘hand experts’ of all colours. IMO there is definitely value in the wisdom of the crowd in instances like this which relate to a very specific interaction between a physical activity and a disease. Academic knowledge does not always trump firsthand experience. Surely it’s a case of taking every source of info on its own merits anyway. But each to his own.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Oldmanmatt on April 16, 2015, 11:53:54 am
(http://images.tapatalk-cdn.com/15/04/16/442931978673f9fc1a5e23e208f095c7.jpg)

It's been five years since I noticed it.
Ring finger on both hands, but way more pronounced on the left.
No real change. No real problems except occasional over abrasion issues after too much granite sloper action...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on April 16, 2015, 01:56:18 pm
Each to their own, but I think your position looks rather kneejerk for someone who believes in evidence based behaviour. On the one hand you have a mixed bag of ‘hand experts’ of varying levels of experience, many/most of whom outside of Sheffield will most usually have come across DC in elderly white men and alchoholics. Read around on the subject and it looks like a large proportion of  the ‘experts’ will channel you toward open hand surgery without pointing out or discussing the pros/cons of the (IMO better) needle op. I tend to think this is because they generally deal with elderly sufferers so aren’t used to dealing with people who will have to manage this condition for a fair proportion of their lifespan rather than a decade or two at the end. On the other hand you have a mixed bag of climbers with varying levels of experience of the condition the therapies and how these relate to the hand intensive activity of rock climbing; many of whom are quite bright and have looked into the subject at length and consulted with ‘hand experts’ of all colours. IMO there is definitely value in the wisdom of the crowd in instances like this which relate to a very specific interaction between a physical activity and a disease. Academic knowledge does not always trump firsthand experience. Surely it’s a case of taking every source of info on its own merits anyway. But each to his own.

I've no problem with taking every source of information and judging it on its own merits that is as you say a good thing.

The problem I have with people posting on forums in the style Haydn has done is there is no indication that any other source of opinion is being sought in conjunction with this, which is why I suggested seeing an expert who will have plenty of first hand experience not only of old alcoholic Caucasian males but also, if this thread is anything to go by, increasingly climbers.  Haydn hasn't even posted a picture of the affected site as Matt has sensibly done so that others can actually see what is being talked about.

It is useful this thread exists, as well as other things such as POD's article of his experience (http://www.ukclimbing.com/articles/page.php?id=1312).

If my post comes across as overly zealous for seeking a trained professionals opinion its simply because there is no evidence from many posting here that it has been sought in conjunction with posting in this thread, although if I remember correctly without re-reading the whole thread you have done and have also perhaps received needle treatment.  With the particular post you responded to I genuinely think that documenting disease progression is worthwhile, and something all of those with concerns should be doing to take to the 'expert' when they decide to go.  Without photographing at regular intervals (ideally medical imaging so its consistent over time) there is huge bias in an individuals ability to recall the stages of progression.  I've a friend who suffer from crippling bad backs, it comes and goes, and he can't work out what aggrivates it, my suggestion, keep a diary of your daily activities and see if any patterns emerge.

This isn't that dissimilar to keeping a training or climbing diary of what you have done, since minds are fallible and easily biased.

Given everyones vested interest I genuinely think, as I recall I've written before in this thread, that those seeking treatment should speak to the medical experts who are treating them and encourage them to investigate the epidemiology further given the increased participation in Rock Climbing and perhaps, if the anecdotal evidence being posted here might suggest, in turn incidence of Dupuytren's Contracture in the sub-population of those who engage in rock climbing.

With regards to being channelled towards hand surgery by 'experts' that is likely because at present that is the treatment for which there is the most evidence to support its efficacy.  In comparison the needle treatment was only developed ~20 years ago according to PODs article and as such there is less evidence to support its efficacy.  Thats not to say it should be ignored, rather, as McLeod advocates in his new book, you should discuss your knowledge of the area (in this case the possibility of needle therapy) with your consultant and explore the options.  I didn't suggest blindly taking the advice of an 'expert', rather that their opinion should be sought.  As with the epidemiological aspects they may actually be interested in conducting a clinical trial to compare the efficacy of the two (or more) treatments to improve the body of knowledge as to best practice for treating the condition.  This wouldn't be hugely dissimilar to how many other areas of treatment investigate and test the efficacy of competing treatments, for example this study comparing two methods of surgery for hemorrhoids (http://www.biomedcentral.com/1471-230X/12/153) that I'm working on.

I may be able to contact an old colleague who I did some work with who was a plastic surgeon and worked on Dupytren's (he was looking at gene expression profiling in the affected areas) if anyone is interested (no idea if he will be).

But each to their own.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 16, 2015, 03:58:08 pm
I agree with most of that but I can’t see anything wrong with asking around your peer group prior to seeking specialist advice, especially if a condition is common among them. If it is DC, which is probable, then it is very slow progressing even at worse. Given this rate of progress I’d rate talking to folk who do the same thing as you, and who say they have the thing you think you might have, as a very logical first step. I can’t see anything in what Haydn wrote which suggested this was the end of his information gathering.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on April 16, 2015, 04:27:18 pm
And at the same time there was nothing suggesting further information was going to be gathered which is why I suggested seeking it.

Its the same with every field, you could learn a lot about Statistics or Rope Access Techniques searching the internet and asking on forums, but when it comes to getting the job(s) done professional qualified/certified 'experts' are consulted and employed for their 'expert' knowledge.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 17, 2015, 09:16:04 am
Well there you go. I'm joint head of rope access at our company and if I wanted a rope access job done on my house (if I had a huge house and didn't have time to do the job myself that is), I'd get a friend who I knew first hand was capable to do it rather than call in a qualified professional who I knew nothing about. Whether they held a current IRATA cert would be by the by. This is all rather hair splitting though I think. My point is that unauthorised sources of info are often as good or better than the authorised ones and it's easier to weigh up info from people you know rather than people you don't. I perceive a degree of professional inertia in the way DC is dealt with and as such, personal research, which can easily be dismissed as the dreaded 'internet diagnosis', is of high value.
Case in point: I recently spoke to a climber of roughly my age who I hadn't been in touch with for years. They called me out of the blue after being advised by a 'hand expert' to have open hand surgery. I told them my experience and the pros and cons of the two main options as I saw them. After going away and doing some more research and getting a consultation with the guy I had suggested they opted for the needle procedure. So far they are very happy with the outcome. There is no way of proving they got a better outcome as a result of the discussion, but I think they have, and they probably agree.
Likewise I only went for this option after speaking to a climber who had had open hand surgery on one hand and the needle op on the other. The former had been a disaster and the latter had been painless and effective. I know it's only a sample size of one, but it meant a whole lot more to me than a load of assurances from an expert with no direct reference to climbers.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: corset1975 on April 17, 2015, 10:38:18 am
Just to add my two pennys worth. I am 39 with a family with no history of Depuytrens at all. About 5 years ago my hands started to curl and nodules began to appear, it was painfull to drive and my my little fingers were beginning to curl in.
I have been climbing for about 20years (badly) and consider myself heavy or fat, as you view it,  i weigh about 15stone and am 6ft 2 hall. I mainly boulder and as such i think my fingers have had a lot of strain above the national average. On top of that i enjoy wood working (i live a sad and boring life) which has a high level of hand impact trauma from hand tools etc.
I went to the NHS they said they would operate at 45 degrees bend. Which is a joke. I went to the a hand specialist down in essex (forgotton his name will have to look it up) and he was fairly open  about options he said that the needling does work but its best at slowing the symptoms and doesnt work for everyone. I personally couldnt see the point (no joke)
My symptons were early onset so I opted for radio therapy which was a bit scary but the risks seem low. I had two treatments 8 weeks apart over a week taking about 15mins each day. Initially all i got was a red dry palm but.....
two years on all my hard nodules seem to have softened, the constant tight sensation has gone, my fingers seem to be straighter and if you lay your fingers on a desk i can lift indiviually fingers that i couldnt before (depruytrens test). I can detect no new nodules developing. Evidence from germany seems to suggest that if treaated early this can can delay by 20-30 years but then again another report may contradict it.
Personally very happy but for all i know if i had done nothing they may not have got any worse....
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on April 17, 2015, 10:48:14 am
I had an inkling you did rope access which is why I chose it as an example (I recall your pictures of working on the London Eye).

Using your friends is conditional on you knowing that your friends are capable/qualified.  Same is true of your long lost friend, they knew you had direct experience and clearly valued your opinion.

Nothing wrong with this at all if people are happy with that.

And you're right it is splitting hairs, but I felt Adams comment was  glib and read on its own implied not to bother seeking out a hand expert.  In the absence of any other form of advice being offered, or mention from Haydn that other avenues had been sought, I was suggesting that relying on an internet diagnosis alone without even having posted a picture for others to see the affected as Adam seemed to be suggesting might be unwise and to seek the opinion of a professional as well.

I think it will be really interesting to see how people's nodules develop over time and would encourage everyone who is suffering from contractures to get a confirmed diagnosis and to track their disease progression themselves with regular photographs (they'll be of some use when it comes to disscussing treatment).  It really would be great if more research could be done on the topic and I'd encourage anyone who is going to see a doctor or hand specialist to go armed with as much information as you can find, from this thread and elsewhere and ask them if they have any plans to do research on the sub-group of climbers who appear to be suffering from slightly higher incidence than the general population.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on April 17, 2015, 10:52:39 am
To be fair I know Haydn and he knows about my experience with DC and Adam may have know this too, but you weren't to know that.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Fiend on April 17, 2015, 11:24:03 am
I went to see a hand specialist, and I got 'Hmmm, we'll have to wait and see. Come back if it gets worse.'

HTH.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tregiffian on April 17, 2015, 12:14:56 pm
Had my pinkie operated on yesterday. Being under general anaesthetic no chance to chat about climbing or glucosamine.
I`ll try to quiz the guy later.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Oldmanmatt on April 17, 2015, 05:48:47 pm
I've never consulted a live human on the subject and (frankly) self diagnosed based on  cursory research.
Interestingly, until today, I would have said I had no restriction of movement.

But I've just tried the palms on the desk and raise individual finger test, as mentioned above.
Whilst this is easy for most fingers, I can hardly move either ring finger (the only ones with obvious nodules).
So I amend my "no real issues" statement above and guess I will have to monitor it more closely.

I never would have considered consulting a Quack on the subject. Odd lumps are worrying, but not when they are symmetrical/mirrored on both hands (as that makes the really worrying "odd lump" extremely unlikely).


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Title: Re: Rock climbing link to Dupuytren's disease
Post by: tregiffian on April 23, 2015, 10:48:49 am
The physiotherapist made a firm connection with climbing - also roadmending,lumberjacking and...... Not pole dancing.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on April 23, 2015, 11:11:12 am
For those self-diagnosing getting hold of a copy of this might be worthwhile...

Pervulesko, Nora, Volker Schöffl, and Christian Gormasz. "Evaluation of a self-diagnostic tool for Dupuytren's disease in rock climbers." Hand Therapy 16, no. 2 (2011): 45-48. (http://hth.sagepub.com/content/16/2/45.short)

It had good sensitivity and specificity (https://en.wikipedia.org/wiki/Sensitivity_and_specificity) in the small sample size it was assessed in.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tim palmer on April 23, 2015, 12:14:31 pm
For those self-diagnosing getting hold of a copy of this might be worthwhile...

Pervulesko, Nora, Volker Schöffl, and Christian Gormasz. "Evaluation of a self-diagnostic tool for Dupuytren's disease in rock climbers." Hand Therapy 16, no. 2 (2011): 45-48. (http://hth.sagepub.com/content/16/2/45.short)

It had good sensitivity and specificity (https://en.wikipedia.org/wiki/Sensitivity_and_specificity) in the small sample size it was assessed in.

This study is so methodologically poor it is totally meaningless, no useful description of recruitment, tiny numbers, no randomisation, no control group, no point in reading it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 23, 2015, 12:22:41 pm
So what do other people's lumps look like? This is mine, right hand only, been this size for years(http://images.tapatalk-cdn.com/15/04/23/6ed1434922af62155b972b37a94e2407.jpg)
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on April 23, 2015, 12:32:07 pm
For those self-diagnosing getting hold of a copy of this might be worthwhile...

Pervulesko, Nora, Volker Schöffl, and Christian Gormasz. "Evaluation of a self-diagnostic tool for Dupuytren's disease in rock climbers." Hand Therapy 16, no. 2 (2011): 45-48. (http://hth.sagepub.com/content/16/2/45.short)

It had good sensitivity and specificity (https://en.wikipedia.org/wiki/Sensitivity_and_specificity) in the small sample size it was assessed in.

This study is so methodologically poor it is totally meaningless, no useful description of recruitment, tiny numbers, no randomisation, no control group, no point in reading it.

Maybe if you read the abstract....

Its not meant to be randomised since there is no therapeautic intervention and therefore no need for a control group either.  Rather its a diagnostic tool that has been developed and is being tested and is asking the question "Can this questionnaire correctly diagnose Dupuytren's Contracture".  Participants will have used the diagnostic tool which consists of four questions with pictures to self-diagnose.  This diagnosis was then clinically confirmed by trained medical experts.  The result shows that the diagnostic tool gives pretty much the same answer in the vast majority of cases as the clinical diagnosis.  Thus it would be useful to make it available for those who are concerned to self-assess with some accuracy before then going and seeing medics.  This reduces the burden on health care by reducing the number of false-positives that are seen by medical professionals.

You're right there are only small numbers, but I acknowledged that in my post, as do the authors in stating their numbers so that readers can assess the validity of any claims.  I've not been able to access the full text so can't critique their strategy of recruitment.  I would hope that in the full text they report the Positive Predictive Value and the Negative Predictive Value too.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: petejh on April 23, 2015, 12:36:29 pm
(https://lh3.googleusercontent.com/O-Mt8NKrFx4vjGJktg_JtuYxSKBT8q4ZAgFkqpl6cDk=w554-h414-p-no)

RH. 2 or 3 large lumps on pinky tendon, 1 on index tendon. Also similar layout to a lesser extent on LH.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on April 23, 2015, 12:46:04 pm
How old are you Pete? If you don't mind me asking? I'll be 46 shortly.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tim palmer on April 23, 2015, 01:25:04 pm
For those self-diagnosing getting hold of a copy of this might be worthwhile...

Pervulesko, Nora, Volker Schöffl, and Christian Gormasz. "Evaluation of a self-diagnostic tool for Dupuytren's disease in rock climbers." Hand Therapy 16, no. 2 (2011): 45-48. (http://hth.sagepub.com/content/16/2/45.short)

It had good sensitivity and specificity (https://en.wikipedia.org/wiki/Sensitivity_and_specificity) in the small sample size it was assessed in.

This study is so methodologically poor it is totally meaningless, no useful description of recruitment, tiny numbers, no randomisation, no control group, no point in reading it.

Maybe if you read the abstract....

Its not meant to be randomised since there is no therapeautic intervention and therefore no need for a control group either.  Rather its a diagnostic tool that has been developed and is being tested and is asking the question "Can this questionnaire correctly diagnose Dupuytren's Contracture".  Participants will have used the diagnostic tool which consists of four questions with pictures to self-diagnose.  This diagnosis was then clinically confirmed by trained medical experts.  The result shows that the diagnostic tool gives pretty much the same answer in the vast majority of cases as the clinical diagnosis.  Thus it would be useful to make it available for those who are concerned to self-assess with some accuracy before then going and seeing medics.  This reduces the burden on health care by reducing the number of false-positives that are seen by medical professionals.

You're right there are only small numbers, but I acknowledged that in my post, as do the authors in stating their numbers so that readers can assess the validity of any claims.  I've not been able to access the full text so can't critique their strategy of recruitment.  I would hope that in the full text they report the Positive Predictive Value and the Negative Predictive Value too.

I have read the entire article and it is turd.

Diagnostic tools can and should be assessed by the similar criteria to those of an interventional trial i.e. construct it in such away as make a meaningful comparison with what is done currently and they have not, they could easily have had a second arm of "do you have dupuytren's?"  and it would have been mildly less useless.  Because it could be the case that all the people who were "false positives" according to their criteria would not say they had DC so in fact their questionnaire is no more useful than a yes-no question.   

It may be that this questionnaire is great but because of the way they have designed and written their study they have done nothing more than waste a physiotherapist or surgeon's time.

I am amazed this got by a reviewer.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on April 23, 2015, 01:31:17 pm
I've never been involved in the design of a diagnostic tool who's accuracy is being assessed that has a control arm.  The new methods are, in my experience, ubiquitously assessed against the pre-existing "gold standard" for diagnosis.

I'd be very grateful if you could point me to methodological papers on such study designs as you are suggesting or papers where this has been done because as I say I've never come across it before and it would be useful for my work to be aware of such methodologies.  Is there for example an equivalent to the CONSORT Statement (http://www.consort-statement.org/) for diagnostic tool accuracy?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tim palmer on April 23, 2015, 01:44:31 pm
I've never been involved in the design of a diagnostic tool who's accuracy is being assessed that has a control arm.  The new methods are, in my experience, ubiquitously assessed against the pre-existing "gold standard" for diagnosis.

I'd be very grateful if you could point me to methodological papers on such study designs as you are suggesting or papers where this has been done because as I say I've never come across it before and it would be useful for my work to be aware of such methodologies.  Is there for example an equivalent to the CONSORT Statement (http://www.consort-statement.org/) for diagnostic tool accuracy?

Every modern textbook on research methodology will tell you this!

DON'T YOU SEE THE "GOLD STANDARD" IS THE CONTROL ARM!

You have to compare what you are testing to something else, otherwise it doesn't mean anything.

Go on to Pubmed or even google "diagnostic test study design" and every single article will say you need a comparison group which this study doesn't. 

Or as an alternative here is a really good book which explains how to understand and evaluate study:

http://www.amazon.co.uk/Understanding-Clinical-Papers-David-Bowers/dp/0470091304

Title: Re: Rock climbing link to Dupuytren's disease
Post by: tim palmer on April 23, 2015, 01:55:21 pm
here is the analogous material to the consort guidelines for anyone who is interested:

http://www.stard-statement.org
Title: Re: Rock climbing link to Dupuytren's disease
Post by: slackline on April 23, 2015, 02:03:26 pm
You've confused me with your definitions or use of terms as I understand them, as you started off saying that there was no control group...

...no randomisation, no control group...

... now you are saying there is...

DON'T YOU SEE THE "GOLD STANDARD" IS THE CONTROL ARM!

...and the "Gold Standard" is the current existing best diagnostic tool, which in this case is the clinical diagnosis.

You have to compare what you are testing to something else, otherwise it doesn't mean anything.

The questionnaire is being compared to the "control"/"gold standard" so I'm confused as to what you think the problem is with this study design.

They have used a cohort design where you take a group of people who are suspected of having the disease and then assess them using both the new tool and the pre-existing "gold standard" by which they will have been assessed at some point anyway.  This in contrast to a case-control design where an affected group already known to have the condition are recruited and compared using both tools to a second control group who are already known not to have the condition*.

I've a number of medical research textbooks on the shelf behind me (Altman's, Armitage's. Woodward's and Kirkwood's) thanks.  I'm a medical statistician at a clinical trials unit and involved in the design, conduct and analysis of such trials, one thats in early stages is whether we can better predict pulmonary embolisms in pregnant women, where by the nature of the condition you can't utilise a case-control study design and we therefore have to take the cohort approach.


* For others who might be interested in this some reading on these study designs can be found here (http://ebp.uga.edu/courses/Chapter%204%20-%20Diagnosis%20I/3%20-%20Evaluating%20diagnostic%20test%20studies.html).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tim palmer on April 23, 2015, 02:10:58 pm
I think we are probably best to continue this discussion by e-mail because i think we have a central disagreement about the function of this questionnaire and what an appropriate gold standard or comparator are.

Also I should apologise for not making my point clear.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Oldmanmatt on April 23, 2015, 03:16:12 pm
No! Carry on.
It's riveting, I like a good academic battle.


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Title: Re: Rock climbing link to Dupuytren's disease
Post by: tregiffian on April 23, 2015, 04:54:59 pm
All I know is that my pinkie lumps on palm and on the first bit of the finger were bigger than above. Now , for the first time in years, I can get my hand  flat and when Amy at the surgery takes the dressings off on Monday I shall have to hold myself back for a week or two then.....
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on October 02, 2015, 02:48:09 pm
Good to see someone is doing a study on DC linkage to climbing. Worth contributing to I think. Doesn't take long to fill in.

https://www.thebmc.co.uk/dupuytrens-contracture-research-survey
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Nibile on October 02, 2015, 04:26:26 pm
Done.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Oldmanmatt on October 02, 2015, 06:39:41 pm
Done, 10 min, must be worth it just to establish a correlation?


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Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on October 05, 2015, 09:54:12 am
Done
Title: Re: Rock climbing link to Dupuytren's disease
Post by: filz on October 05, 2015, 11:10:44 am
Done.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: JonB on November 18, 2015, 01:47:06 pm
I've had what I believe to be a contracture in my LH for about 7-8 years now and since the initial pain and settling down period it has been fairly stable and without issue.

However, I'm now developing the same in my RH and it hasn't yet settled and is causing quite a lot of pain and general weakness in the back half of my hand (shaking hands for instance is very painful). I'm also finding that it seems to be affecting the joint nearest my hand on my ring finger which feels constantly under tension.

My LH issues were worst after my Euro climbing trip, pocketed venues seemed to really aggravate things and my RH issues first appeared after a stint of pocket climbing.

I try not to massage or stretch the nodules as that seemed to slow the stabilisation in my LH (he says with no benchmark), I'm assuming climbing regularly provides enough breakdown/stretching.

I've got a very small lump below the base of my ring finger on the left hand, and got quite a bit of pain in the palm and around the base of the middle two fingers from pulling on a pocket the other night. Didn't feel like a flexor strain (had that before so know what it feels like), this was just kind of an over stretched feeling, I guess. Went and climbed some other stuff and it didn't really bother me for the rest of the night.

Anyone else find pocket pulling an aggravating factor?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on September 26, 2016, 12:09:03 pm
For the last two weeks my little finger (which the lump is in line with) has been twitching like mad on and off, proper spasms. Is this an ominous sign that it might be getting worse? Anyone had similar?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on September 26, 2016, 01:26:33 pm
I get pins and needles/ numbness in my little finger. Never though to associate it with DC, pretty sure it is referred from back problems.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on September 26, 2016, 01:31:38 pm
Hopefully it's just me correlating. My back has been OK for a while.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on November 10, 2016, 01:28:00 pm
Shit. Just found a small lump for my ring* finger tendon in my RH (its about the size of a large grain of rice). No pain, no contracture. Having schlepped through 4-5 pages of threads - it seems there is little to do about it until it causes pain/problems.. Have I missed anything/is there anything I can/should do about it? Aside from stretching that may or may not help :)

Or is it just wait for it to get bad enough to require surgery? No need to stop climbing/training?

*edit - sorry put index in first post..
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on November 10, 2016, 01:56:51 pm
My tendons feel bigger than rice grains tbh, lumps are lentil sized. Mine doesn't seem to be progressing the last five years. Massage it, stretch it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on November 10, 2016, 01:59:46 pm
Thanks JB. No contracture whatsoever, but was a bit of a shock to find it!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on November 10, 2016, 02:12:29 pm
Mine is more lentil sized too. Climbing or not climbing seems to have no effect, so you may as well carry on.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on December 18, 2016, 08:28:40 am
Shit. Just found a small lump for my ring* finger tendon in my RH (its about the size of a large grain of rice). No pain, no contracture. Having schlepped through 4-5 pages of threads - it seems there is little to do about it until it causes pain/problems.. Have I missed anything/is there anything I can/should do about it? Aside from stretching that may or may not help :)

Or is it just wait for it to get bad enough to require surgery? No need to stop climbing/training?

*edit - sorry put index in first post..

Just been re-evaluating my lump after a day at Curbar seems to have worked it a little bit.

I initially thought it was on my ring finger - but now pretty certain its on the tendons from my little finger. Apparently this is less common. Nothing else to report... :/
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Jim on December 18, 2016, 10:38:38 pm
I've got 2 lumps on each hand and on my left hand there seems to be growing some sort of worm hole/portal to another dimension similar I think to what Jonboy has. Have only noticed this recenlty and can only say with the little amount of climbing I do these days, it seems to be getting worse the less I climb although it doesn't actually seem to cause any pain, just looks bad?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tregiffian on December 19, 2016, 08:54:06 am
Just keep on trucking till it gets in the way in finger/hand jams.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Johnny Brown on December 19, 2016, 10:03:14 am
Is it pulling your fingers in yet? Restricting how far back you can bend them?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Oldmanmatt on December 19, 2016, 10:36:48 am
Mine doesn't seem to have advanced in four years since I first noticed it. Biggest problem is callus management, to stop flappers.
Considering that I train or climb ~16-20 hrs per week, I'm currently doubting the link.
I definitely have restricted movement, when my hand is placed palm down on a flat surface and I try to raise my fingers. But, it hasn't changed.


All posts either sarcastic, tongue-in-cheek or mildly mocking-in-a-friendly-way unless otherwise stated. I always forget to put those smiley things...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on November 21, 2017, 03:17:52 pm
An update...

Following my Dupuytrens last year - I (for other things) had a series of blood tests - which found FA except that I had low vitamin D levels. I was put on a high dosage (c.5 times normal daily input) for 6 months followed by normal levels daily supplements (that I just get from the chemist).

And... during the 6 months of high dose my Dupuytrens has nearly gone... there are still small knots there - but its much reduced and no pain whatsoever. No real changes in any of my climbing patterns or training...

Just saying....
Title: Re: Rock climbing link to Dupuytren's disease
Post by: alpinebisou on November 23, 2017, 09:52:26 pm
Just adding my experience for the record - this thread is a good resource.

I'm 39, climbing 25 years, no family history.

In April I discovered 2 nodules in my left hand - on the palm, tendons leading to ring finger and pinky. Initially had some sensation in them - not exactly pain, but kind of stiffness in the hand. Apparently there is often pain/sensation when they are growing. No contracture.

I saw two doctors (surgeons), who basically said come back when your hand is crippled and we'll operate.
I am lucky enough to have insurance through work so decided to have radiotherapy treatment on the hand, which they covered after some arguuing. I had it done in Guildford as a private patient at an NHS hospital, although it is not currently available on the NHS. It is the only more preventative tratment available, so I thought I'd give it ago. The evidence of its effectiveness is quite encouraging, but its not completely proven.

The doctor and staff that saw me didn't seem in any doubt it was related to climbing. They run a specialiist clinic for it and seemed to know what they were talking about / doing - they were great.

Since I had the treatment, the nodules have not progressed and maybe have even got slightly smaller. Obviously, this could have been the case anyway, and it may still get worse over time. So I can't say the treatment was 'successful', but so far it hasn't been unsuccessful. I had to take some time off climbing for the skin to heal, but nothing serious.

As it is currently, the condition doesn't affect climbing or anything else. No doctor told me to stop climbing and I wouldn't see the point unless it was a lot worse than my case.

I was taking glucosamine for probably 5 years on and off (not religiously, fairly small dose) before I got the nodules. I read some stuff about a possible connection so cut that out straight away. Can't say I noticed much difference taking it or not anyway.

Cheers, Andy
Title: Re: Rock climbing link to Dupuytren's disease
Post by: moose on November 23, 2017, 11:03:34 pm
Likewise, adding more anecdote in the hope it adds up to evidence!

I developed nodules along my LH little finger around 5-6 years ago, they progressed very slowly at first, but for the past 1-2 years the severity increased apace.  During this period I took up fingerboarding - maybe a coincidence, maybe not.

I finally bit the bullet and went to the GP about it.  I have health insurance through work and got an appointment with a consultant at a private hospital.  I explained to the consultant that my job relies on manual dexterity (I am a forensic scientist), that climbing is very important to me, and that as I am fairly young (41 y.o) I would prefer a minimally invasive treatment that does not predjudice future treatments. 

The consultant made it clear that in his opinion, surgical fasciectomy was the only choice.  I pointed out that I would prefer to avoid an approx 6 week lay-off from work (I work in dirty contaminated environments).  Also, I feared that, given the early onset of my condition, I might relapse fairly quickly, and need further intervention, and that surgery can prejudice the future use of other treatments (basically, after two surgeries, scar tissue build-up might render amputation the next recourse).

After google-inspired prodding, the consultant then admitted that needle aponeurotomy was perhaps more suitable and I got another referral to his colleague who did the treatment.  The second consultant said the needle treatment was the quite obviously the most sensible first course of action given my life-style - it might not keep the condition at bay for as long as surgery, but it can be performed repeatedly without problems (and surgery is always an option afterwards, which is not the case vice-versa).

The result: I had the needle treatment: the operation lasted around 15 minutes (amidst 1/2 day of hanging around with my arse hanging out of an unflattering gown).  The post-op damge was limited to a couple of small incisions covered by plasters: I was back climbing (indoors) in a couple of days and work was uninterrupted.  Whilst I am not "as new", my hand is less crooked and even if it reverts within a few years, I would prefer to lose another day or so than be out of action for months with the knowledge that I have permanently reduced my future prospects of recovery.

The LR:DR version:  the nature of a consultant's decision can depend more on their particular prejudices / specialities, than what is best for you: do not be afraid to query.

and TomTom... sounds like coincidence to me... but I have ordered a jar of ultra-strength Vitamen D tablets!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on November 24, 2017, 12:37:02 pm
Sure it's old news but..

I've had some nodules in my right palm along my little finger tendon for about 15 years. The only time I've noticed growth (perceived or otherwise) in that time is when I was taking GSS, which i stopped as soon as i read about the link on here. This was about 5 years ago. Since then i've done nothing, and there is no sign of growth as far as i can see and (apart from getting a bit sore if i climb on jugs, or do a long cycle ride) it causes me no discomfort. I'll keep watching though (I'm 48 now).
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Jim on January 30, 2018, 01:47:32 pm
I've got 2 lumps on each hand and on my left hand there seems to be growing some sort of worm hole/portal to another dimension similar I think to what Jonboy has. Have only noticed this recenlty and can only say with the little amount of climbing I do these days, it seems to be getting worse the less I climb although it doesn't actually seem to cause any pain, just looks bad?
after having 9 months off climbing last year due to shoulder surgery mine has definitely got worse to the point where I might have to do something about it, probably start by taking vitamin D supplements like Tomtom suggested and see how it goes from there although I have just started climbing again although no where near as much as I used to (once a week if I'm lucky!)
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Oldmanmatt on January 30, 2018, 02:42:44 pm
You’re not going to believe this, but...

Mines got better.

The nodules are still very much there and calluses are still an issue, however I have recovered full mobility (ie no restrictions in the flat surface test, I can raise all fingers).
I’m putting it down to removing repeaters from my training (this has also resolved a long standing tendonitis in my right brachioradialis (I know, n=1, correlation not being causation etc etc)) and switching to deadhangs/frenchies/pullups on the BM. Still Campusing.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on August 08, 2018, 11:50:24 am
Just had a second one appear on my palm, on the ring finger tendon. Feels like it has appeared over the space of a month or so, to a point where it is visible under the skin and sore to the touch. I can't remember the first one (on pinkie tendon) appearing at all, or being painful, is it likely to desensitise over time? I've made no changes to training, diet or anything, if anything, climbing less than usual right now.

Hope this doesn't end my dream of Olympic Gold.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: sidewinder on August 08, 2018, 04:04:14 pm
Mine seem to go through phases of being more/less prominent and more/less tender.
One hand was particularly sore on lumps first appearance. I have also pulled tendons in my palm and a friend discovered his lumps were cysts, not dupuytrens.

Standard disclaimer that you should ignore all medical advice on the internet and if concerned have it checked out, have you had the other lump 'diagnosed'.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on August 08, 2018, 04:43:56 pm
Yes, had last one properly diagnosed, has the classic dimple in the skin just above it where it's attaching, not had this one officially diagnosed, but it has the classic dimple too, so assuming it's the same.

What did he do with the cysts? Hit them with a King James Bible?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: sidewinder on August 09, 2018, 04:33:22 pm
I think they either vanished (benefit of cysts over dupuytrens) or he now just ignores, which I think, unless they are bothering you is now the advice.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: a13c on August 10, 2018, 09:32:55 am
I've had one properly diagnosed 2-3 years ago on my left middle finger, since then I've had a pair of lumps on on my right hand pinkie and ring and one on my left thumb... My all healing osteopath said that you can massage and stretch them out when they're new but that didn't work me. The next best is to just keep stretching them so the contracture doesn't set in. I can cope with the lumps but can't be arsed with permanently folded fingers!
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on August 10, 2018, 12:20:17 pm
Apparently it’s called the Viking disease - some 30% of pop of certain Scandinavian countries have it at some point.

Mine nearly completely cleared up after I went on a course of high dose vit D. Cause or coincidence? Dunno. Not come back since...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: duncan on August 10, 2018, 02:13:05 pm
My all healing osteopath said that you can massage and stretch them out when they're new...

I doubt it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on August 10, 2018, 04:00:15 pm
Yep, i have my doubts too. Climbed for first time since it appeared on Wednesday, and it's already desensitising.

Title: Re: Rock climbing link to Dupuytren's disease
Post by: richdraws on August 13, 2018, 11:57:26 pm
I tried some high rep kettle bell swings for a bit of cardio, it had the unexpected benefit of massaging out the Dupuytren's and leaving my hand much more mobile. Only lasts a day or so.

I've found it hard to motivate myself to do the swings so am back to claw hand.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on September 11, 2019, 11:26:34 am
Yep, i have my doubts too. Climbed for first time since it appeared on Wednesday, and it's already desensitising.

One year on and it's now doubled in size and is a visible lump, much bigger than the first one, and causes pain when puling on big holds on steeper boards, especially when you have to change hand positioning while weighted.

Bit more concerned about this one, even though finger movement is unaffected.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on January 07, 2020, 09:39:50 am
Update. Noticed fingers locking up slightly and clicking with a slight pain when i force them to close. Anyone else with DS having this? Been like this for a while, but feels like worsening of late.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: fatneck on February 28, 2020, 10:39:11 am
I completed this lady's research survey (https://docs.google.com/forms/d/e/1FAIpQLSctXzf3ISrxrDQNM3bIjgyu8hln3CrK9hy_-hNPJgfZoXP7rQ/viewform?fbzx=-4542245901341540173) - she's Italian and the wording is a little clunky but I thought it might help...

Incidentally, I definitely don't have Dupuytren's but I do have ganglion type lumps in both hands broadly underneath my ring fingers. I get zero hassle with these but they are definitely getting worse over time, albeit slowly!

 
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on February 28, 2020, 10:59:37 am
Why do you think it's not DC? The nodules are the start.

I've found my fingers start locking open on both hands now after a hard climbing session, have to force them closed with a hard click when they release. Not sure if it's related or not.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: fatneck on February 28, 2020, 03:20:47 pm
[quoteSA Chris]Why do you think it's not DC?[/quote]

Because I've had them for 7+ years and the rate of worsening is thankfully so slow?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on February 28, 2020, 03:25:54 pm
One of the ones on my right hand hasn't grown in about 10 years, but a second has come up in the last 6 months and is now twice the size of the other.

There is usually a characteristic small dimple in the skin either just above or below it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on February 28, 2020, 03:35:37 pm
[quoteSA Chris]Why do you think it's not DC?

Because I've had them for 7+ years and the rate of worsening is thankfully so slow?
[/quote]

Similar to Si - mines not changed in a few years (maybe got better)

Guess I should just be grateful?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on February 28, 2020, 04:17:50 pm
Apparently many adults don't progress beyond the nodules. The one growing on my ring finger is coming up fast though, the ones on my pinkies on both hands haven't grown at all.

There's a facebook page now, i recommend you don't follow it as it will freak you the fuck out..
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on November 11, 2020, 08:34:40 am
Disappointingly, a lump has appeared on my left hand (palm below little finger - a classic Dup spot apparently) in the same spot as my right hand. The one in my right has stabilised/shrunk a little over the years - but the one on the left is a little niggly - I guess its new and making its presence felt :D

But my Q - is there any new knowledge or advice for this? From my scan nothing seems to have moved on much in the last 10 years or so? To summarise what I think is the present state of knowledge - no one knows why it happens though its possibly genetic (Scandinavian links), theres no real therapy for it - surgery is the only thing that seems to work (and mine is a long long way from being that bad). In other words get used to it TomTom....
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on November 11, 2020, 09:03:37 am
That sounds like a fair summary. I'd add, avoid high dose vit C and glucosamine supplements, on a precautionary basis as there has been suggestion these can promote DC progression.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on November 11, 2020, 09:42:47 am
That sounds like a fair summary. I'd add, avoid high dose vit C and glucosamine supplements, on a precautionary basis as there has been suggestion these can promote DC progression.

Thanks Jon not taking either - anecdotally - the one on my RH got much better after having 2 months of high dosage vit D (250 ug a day prescribed for a deficiency - about 10 times the required) - though since then I've been taking a daily supplement at a regular dosage (10-25ug) so that casts some doubt on it... 

It may be no coincidence that I'm climbing/training 5-6 days a week since March which is a step up from any previous frequency...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Danny on November 11, 2020, 10:33:25 am
I thought I might mention here that training pockets on a fingerboard seems to aggrivate my dups. Not sure if others have a similar experience.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: dunnyg on November 11, 2020, 11:09:22 am
Is it worth chatting to a GP when you have had a lump for a while, or just wait until it causes issues (other than getting skinned on slopers every once in a while). I think the NHS site said just get in touch if it stops you doing things...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on November 11, 2020, 11:38:58 am
I thought I might mention here that training pockets on a fingerboard seems to aggrivate my dups. Not sure if others have a similar experience.

I've been using my fingerboard a bit more recently, and find my fingers have a tendency to "lock out" the next morning when I wake up, and only move with a bit of pressure, and give a small jolt of pain, and a sharp click. Not sure if this is DC related or just old age. I have more discomfort training on a steep board and big holds though, they tend to catch right on nodules.

There is a group on FB called "DART, Dupuytrens Advocating Radiation Therapy" where radiation therapy seems to be recommended, but not sure about availability in the UK, and pretty sure not an option on the NHS.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: steveri on November 11, 2020, 12:22:10 pm
Three, possibly four of the stupid nodule things here. I've been ignoring them for a couple of years now, they seem fairly benign and don't cause pain, other than if I really stretch the fingers open. I also have palindromic rheumatism and mentioned them to my consultant, she didn't seem overly concerned.

Are other people in the ignore camp?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: petejh on November 11, 2020, 01:38:17 pm
Another ignore camp-dweller here. Modules on pinkie and ring finger tendons of both hands, been there over ten years now. They seem to have shrunk a bit over the last two years. Used to cause occasional minor discomfort but nothing at the moment.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Ru on November 11, 2020, 01:51:43 pm
My dad has dupytrens and has had 2 operations. I got a nodule in the same place (palm over little finger tendon), same hand, about 10 years ago. It grew a bit, was sore for a while when climbing, but over the last 8 or so years it has gradually shrunk and is now not really noticeable at all. I keep my hand stretched but I have no idea if that has anything to do with it.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on November 11, 2020, 01:58:43 pm
I've not done anything. I personally don't think they actually shrink. More your hand adapts to accommodate them, and they desensitise.

I won't do anything until it significantly affects what I do. I am quite careful about keeping hands open, massage forearms at trigger points to reduce tightness, and stretch my hands regularly.

Neither of my parents had it, nor did their parents as far as I know, although one grandfather died young, the other was a hand engraver and violinist, and my dad never mentioned he had any issues.

I am the only one of 3 brothers to have any issues at all though, which sometimes makes me wonder if it is at all linked to climbing, but if you look at people on Facebook Groups it seems to indicate not.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Bonjoy on November 11, 2020, 02:14:58 pm
My assumption is that climbing can trigger early onset in genetically susceptible people. People who might otherwise never present with symptoms, or maybe only much later in life.
That's based only on the observation that I know a lot of climbers with some DC presentation at an atypically young age. I'd also guess that this is a fairly recent phenomena resulting at least in part from increased climbing/training intensity in recent decades among participants.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Paul B on November 11, 2020, 02:24:54 pm
Another in the ignore camp here. Mine were the most problematic towards the end of a long trip when I ended up climbing in Spain on pockets. My diet was poor and my alcohol consumption was probably relatively high.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: erm, sam on November 11, 2020, 03:02:01 pm
ignore
Title: Re: Rock climbing link to Dupuytren's disease
Post by: moose on November 11, 2020, 10:49:41 pm
My 67 yo dad has Dupuytrens and didn't know until I pointed it out - he thought the nodules were just calluses from decades of wielding spades at work. My Dupuytrens was sufficiently bad that I got the less invasive keyhole surgery for it 2-3 years ago (at age 41-42). It's since redeveloped and is near as bad now, as it was then. Now I've just decided to cope with it until it becomes unbearable (not much choice anyway - suspect it's a low priority for hospitals at present!). So, lots of stretching, particularly before climbing - as otherwise my little finger tends to prang below holds! And, needless to say,  I really don't get in with big indoor slopers.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on November 12, 2020, 12:06:02 am
i do wonder if the nodules catching on the knobbles on the Holdz type slopers sometimes helps....
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Danny on November 12, 2020, 10:00:08 am
I went through a phase of hammering the shit out of mine with cross frictional massage and stretching, which seemed to aggrivate them. Ignore seems to be the best strategy for me at the mo. I've always been incredibly shit at climbing on pockets, and I only started fingerboarding--including training pockets--about 3 years ago. Mine have all cropped up over this period. Obviously all of these happenings covary with getting old, so I can't really pin causality. That said, since I've stopped training pockets they seem to have regressed.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on November 12, 2020, 10:05:52 am
I went through a phase of hammering the shit out of mine with cross frictional massage and stretching, which seemed to aggrivate them. Ignore seems to be the best strategy for me at the mo. I've always been incredibly shit at climbing on pockets, and I only started fingerboarding--including training pockets--about 3 years ago. Mine have all cropped up over this period. Obviously all of these happenings covary with getting old, so I can't really pin causality. That said, since I've stopped training pockets they seem to have regressed.

Yeah - from the literature they are most commonly (by quite a margin) on ring and little finger - so training the back two is probably not going to er 'help' the situation..
Title: Re: Rock climbing link to Dupuytren's disease
Post by: yetix on November 12, 2020, 10:45:14 am
I spoke to Huffy a few weeks ago and he thought that I had this amongst some other issues in my left hand. He said it was in its early phases and asked me to to do some lumbrical stretches kind of like this https://images.app.goo.gl/uifJqDep7LrS4YFc6 but straight armed and palm away from me to fully stretch it. I'll report any observations here.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: Danny on November 12, 2020, 11:49:45 am
I went through a phase of hammering the shit out of mine with cross frictional massage and stretching, which seemed to aggrivate them. Ignore seems to be the best strategy for me at the mo. I've always been incredibly shit at climbing on pockets, and I only started fingerboarding--including training pockets--about 3 years ago. Mine have all cropped up over this period. Obviously all of these happenings covary with getting old, so I can't really pin causality. That said, since I've stopped training pockets they seem to have regressed.

Yeah - from the literature they are most commonly (by quite a margin) on ring and little finger - so training the back two is probably not going to er 'help' the situation..

Ach, and there I was getting all excited about trying Perfecto Mundo. I guess I'll just resgin myself to being always shit on pockets  :)

Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on November 13, 2020, 10:21:47 am
I spoke to Huffy a few weeks ago and he thought that I had this amongst some other issues in my left hand. He said it was in its early phases and asked me to to do some lumbrical stretches kind of like this https://images.app.goo.gl/uifJqDep7LrS4YFc6 but straight armed and palm away from me to fully stretch it. I'll report any observations here.

I hope not literally like that, there's no way any of my fingers will curl that much..
Title: Re: Rock climbing link to Dupuytren's disease
Post by: sidewinder on November 13, 2020, 10:32:52 am
I hope not literally like that, there's no way any of my fingers will curl that much..

I (also with dupuytrens) have done stretches like those when having issues with stiffness, while nowhere near that range amazing the improvement if held for a while, I found could do them while walking.

I am of the 'don't mess with it' school of thought to my nodules and mainly look to avoid aggravating them, which includes some of the massaging/stretching suggestions. I did puncture (I think) one slapping onto a sharp fin of limestone in Sicily, it wept profusefly for a few days and was then noticeably smaller for a couple of years. I do think the nodules likely make the tendons run less well meaning extra potential for finger issues.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: richdraws on November 14, 2020, 05:57:25 pm
I have had Dupuytren's on both hands since I was 18. They never got too bad, I think hanging open handed a lot helped.
After taking 6 ISH years off climbing I started up again last year. Quite quickly my Dupuytren's flared up really badly.

I had surgery to correct a very badly contracted ring and pinkie finger in August.



Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on November 16, 2020, 09:10:55 pm
what surgery did you have rich?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: richdraws on November 24, 2020, 08:20:23 pm
It was a dermofasciectomy with a full thickness skin graft, which is supposed to reduce the incidence of recurrence.

Pinkie was numb for a month, took 2 months to return to regular strength.
 
I have to wear a splint on it at night to help the tissue lengthen or at least not contract.



Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on November 28, 2020, 12:27:41 am
Sounds grim, hope it gets back to where you want it to be
Title: Re: Rock climbing link to Dupuytren's disease
Post by: fatneck on January 09, 2023, 12:00:10 pm
Just bumping this up as had an interesting development at the wall yesterday.

Spent ages climbing a slab problem that I'd done before but forgotten how to do (senior problems), which involved multiple foot moves and staying on one small crimp  while I sorted my feet out. I came down off the problem and felt like I'd pulled a tendon in my hand. Mercifully the fingers are fine but looks like I've aggravated one of the existing ganglions and have developed significant though not particularly painful bruising in my palm.

All my other ganglions (3) developed slowly over time and I've never had visible bruising or swelling. I'm not overly concerned...

Has anyone experienced this before?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: turnipturned on January 09, 2023, 12:18:01 pm
Has anyone experienced this before?

Well I did Varain/Aidans stupid sling pick up finger testing things, not only did I have very painful DIP joints for the next month, but I my Duputryen's lumps in my palm went pretty big and noticeable in my right hand! No bruising mind.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on January 09, 2023, 12:27:05 pm
Oddly, I thought about this post only yesterday, as I now have a lump growing directly under the knuckle of little finger that I had not noticed before. It's much higher on the palm than the DC on my ring finger (which is lower down than the knuckle). Is this typical?

I've not done any silly single finger sling pickups, still rehabbing pulley on the same hand.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: fatneck on January 09, 2023, 01:58:31 pm
Thanks for replies.

Oddly enough I looked in Ganglions online and nowhere does it mention them occurring on the palm of the hand! I was thinking that maybe this thread wasn't the best place for talking about them but now feel it is... In terms of Chris's question about typicality, I have no idea sorry.

And Dan, I am amused at the issue we face sounding similar but that we are operating at complete opposite ends of the ability scale  ;D

I have no pain when using the fingers at all, just a sensitivity in the palm when pressed....

Will post up any developments...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on January 09, 2023, 02:22:42 pm
Sounds more like DC lumps than ganglions. Mine don't hurt themselves, but the skin on top them can get sore when you swing about on a big hold that digs into them. I have one on ring finger on right hand (and now one growing on little hand) and smaller ones on index and ring fingers on the right. Send me a pic.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: steveri on January 09, 2023, 02:23:24 pm
I'm vaguely and self diagnosed, 3 fingers of the right hand and pinkie of left. I mentioned it in passing to my rheumatologist and she just remarked "oh that's interesting", didn't seem too concerned. Mine are very slowly getting bigger over the last 7-8y but can still bend all the fingers back. The biggest catches on slopers occasionally (sometimes helps) but no real pain.

The oddest thing is flopping the RH pinkie side to side, the finger rides straight past 'top dead centre' and is more comfortable one or other side. Kind of like the opposite of a self-centring headset on a worn out bike.

Are other people concerned or just accepting as a quirk?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on January 09, 2023, 02:40:16 pm
Sounds like tendon is reluctant to sit on top of a growth? Never heard of it but guess it's not improbable.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: steveri on January 09, 2023, 03:17:09 pm
Yes exactly, just a mechanical 'that thing is in the way of that thing' :)
Title: Re: Rock climbing link to Dupuytren's disease
Post by: clm on February 21, 2023, 05:40:13 pm
It was a dermofasciectomy with a full thickness skin graft, which is supposed to reduce the incidence of recurrence.

Pinkie was numb for a month, took 2 months to return to regular strength.
 
I have to wear a splint on it at night to help the tissue lengthen or at least not contract.

Out of interest, how bad was it to consider surgery? Mine was nodules for ages (10 years) but has recently worsened. My pinkie is 20 to 30 degrees off straight. It still works and I can climb. Only causes any pain/stiffness if I do squeezey things like using secuteurs (sp?) in the garden.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: clm on February 21, 2023, 05:45:19 pm
It was a dermofasciectomy with a full thickness skin graft, which is supposed to reduce the incidence of recurrence.

Pinkie was numb for a month, took 2 months to return to regular strength.
 
I have to wear a splint on it at night to help the tissue lengthen or at least not contract.

Out of interest, how bad was it to consider surgery? Mine was nodules for ages (10 years) but has recently worsened. My pinkie is 20 to 30 degrees off straight. It still works and I can climb. Only causes any pain/stiffness if I do squeezey things like using secuteurs (sp?) in the garden.

Obviously not been to the doctors…
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on February 21, 2023, 06:04:15 pm
On the facebook page a lot of people are getting radiotherapy which appears to generally be successful, but I don't think it's available on the NHS.

Recommend going to a doc ASAP so it's on record and they can see the rate at which it's progressing, which is often used as an indicator as to if treatment is justified.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SamT on February 21, 2023, 10:25:44 pm

Mine has been steadily growing for the last year or so.

It started with a vague notion of a lump or swelling but couldn't really tell if was anything.

I was on the way home from hols just this weekend and commented that "I'm def going to the docs about this when I get back"  as its now a definite pea sized lump.  Still haven't booked an appointment, but shall do so tomorrow thanks to this thread.

Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on February 22, 2023, 08:46:23 am
i have a nodule in line with my ring finger that hasn't grown in about 5 years, directly underneath knuckle, but noticed a small one starting to form directly under the knuckle of my pinkie. neither have restricted anything I do at the moment, just the skin gets rubbed and sore when I swing about on on big holds on a steep board.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tomtom on February 22, 2023, 09:35:36 am
Mine has been 'stable' (couple of palm nodules on LH pinky and ring tendons) until the last 6-8 weeks or so. Now I have a slight numbness/ache/pain running from these down through my wrist. Mainly triggered by overhanging pinches.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: dave k on February 22, 2023, 09:50:11 am
I have had DT for over 15 years. Left hand middle and index finger tendons and RH middle, index and pinkie

I found that it flared up/developed and caused some issues in the first few years, with me waking up at night sometimes with full contracture in one or both hands - needed massage to help it relax.

It maybe coincidental but mine first appeared shortly after taking supplements (glucosamine I think)

I may be lucky but mine has really settled down and has not got any worse in terms of nodules over the last 10 years.

I rarely get the overnight contractures any more. I sometimes get it a little after multiple heavy fingery bouldering session in a week.

Given how bad it was 12+ year ago I was concerned it was going to be a serious problem that needed surgery, and I might have even opted for it as a preventative measure if I had seen a doctor.

I am still climbing pretty well (up to V9) and as regularly as ever. 3-4 times a week.

I expect at some point it will worsen, but will be happy if I can make it to my mid 50s without it causing me major problems (45 currently).

Oh yes! Also I never massage mine anyore. They seem happiest when left alone! I did in the early days and it seemed to lead to some discomfort and if anything worsening.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on February 22, 2023, 10:26:29 am

It maybe coincidental but mine first appeared shortly after taking supplements (glucosamine I think)


Mine definitely accelerated when i was taking this too. Apparently there is a link

https://www.dupuytren-online.info/dupuytren_stages_therapies.html

see last para.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on July 04, 2023, 02:35:45 pm
Waking up with ring finger now (has worst DC) curled, and a weird resistance to it opening (feels a bit like opening one of those kitchen drawers with the soft close mechanism!), and any time I close and open it now it feels like some resistance. Is this how the contraction starts? Wondering if splinting it straight overnight would help at all? 
Title: Re: Rock climbing link to Dupuytren's disease
Post by: spidermonkey09 on July 04, 2023, 05:15:32 pm
I splinted my finger straight overnight when I had a collateral ligament problem and it worked really well. Its an excuse to buy and eat a load of ice lollies as well.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on July 04, 2023, 05:34:10 pm
:) we have a drawer full, collected for numerous art projects. Did you just tape it loosely?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: spidermonkey09 on July 05, 2023, 08:58:01 am
Yeah, basically. Nothing fancy.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on July 05, 2023, 09:03:43 am
Cool cheers. Fortunately it's in my right hand and I'm left handed, so no embarrassing splinter removal ;)
Title: Re: Rock climbing link to Dupuytren's disease
Post by: tlr on October 13, 2023, 03:15:32 pm
I thought that the following info might be useful to some folks as I had the full fasciectomy last week.

I have had a Dupytrens contracture on my left hand for as long as I can remember, probably since my early 30s which was 20 years ago. It was pulling my ring finger in at the MCP joint and got to the point that I couldn't hand jam as I couldn't get my hand in the crack in the first place.

12 or 13 years ago I had the needle fasciotomy which was quick and easy with good results, but the contracture returned with a year or 2. As I had pretty much stopped climbing by then I just ignored it.

My wife is an upper limb orthopaedic anaesthetist, so she and her surgeon see hundreds of Dupytrens and kept a vague eye on it along with the occasional look at it from a friendly surgeon in social settings. Although it never bothered me in the slightest (cycling, photography, computer stuff), once it reached about 70-80° contracture they (wife / surgeon) decided it would be better to sort it before skin grafts were required.

I then saw the surgeon 'officially' through the NHS, got into the system and scheduled an autumn op last week. This involved turning up at the hospital at 7am, having a general anaesthetic and a block (could just have had a block, but I decided I had no wish to witness the carnage) and home by 1pm.

One long, zig-zag cut and 30 stitches later, my hand lays flat again and I have had zero pain from the op. I had a plaster splint for 5 days which was a bit tedious but now I just have some plasters and tubi-grip to protect it with a splint to wear at night. The stitches will dissolve in a couple of weeks at which point I need to massage it with moisturiser.

It'll be another month before I can ride outside, but I will be on the turbo once the stitches have gone and it's safe to get the wound wet. I'd imagine that it would be at least that long before climbing too, if not longer.

For those of you who have seen Pod's UKC article, my contracture was considerably worse than his, and the surgeons cut longer (albeit I only had one contracture).

Early days, but seems successful so far.

Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on October 13, 2023, 03:20:30 pm
Good to know it's not that bad once it comes to it! I'm not there yet...
Title: Re: Rock climbing link to Dupuytren's disease
Post by: steveri on October 13, 2023, 04:03:31 pm
Thanks - that's good data. I've had it 10+ years and the lumps have been getting worse more recently. Contractures still not too bad but the lumps are starting to get in the way.

I mentioned it in a recent rheumatology appt again and they've referred me onto the orthopods. The initial concern from rheumatology was "has it gone too far to treat?" ...but that doesn't sound like an issue from your update, so thanks for taking the time.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on October 13, 2023, 04:56:04 pm
From what I've read, most people never progress beyond nodules / lumps, and those who develop into cords, most never get contractions, and generally, surgery seems to be avoided until there are contractions, so not sure when "too far to treat" is regarded as.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: steveri on October 14, 2023, 02:23:40 pm
Yep, best not give too much weight to an off the cuff remark.
Title: Re: Rock climbing link to Dupuytren's disease
Post by: SA Chris on October 16, 2023, 02:18:08 pm
Is that a deliberate pun or are you just going to palm it off as one?
Title: Re: Rock climbing link to Dupuytren's disease
Post by: steveri on October 16, 2023, 02:25:16 pm
If only I were clever enough for that sleight of hand.
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