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Rock climbing link to Dupuytren's disease (Read 116931 times)

SA Chris

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It maybe coincidental but mine first appeared shortly after taking supplements (glucosamine I think)


Mine definitely accelerated when i was taking this too. Apparently there is a link

https://www.dupuytren-online.info/dupuytren_stages_therapies.html

see last para.

SA Chris

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Waking up with ring finger now (has worst DC) curled, and a weird resistance to it opening (feels a bit like opening one of those kitchen drawers with the soft close mechanism!), and any time I close and open it now it feels like some resistance. Is this how the contraction starts? Wondering if splinting it straight overnight would help at all? 

spidermonkey09

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I splinted my finger straight overnight when I had a collateral ligament problem and it worked really well. Its an excuse to buy and eat a load of ice lollies as well.

SA Chris

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:) we have a drawer full, collected for numerous art projects. Did you just tape it loosely?

spidermonkey09

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Yeah, basically. Nothing fancy.

SA Chris

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Cool cheers. Fortunately it's in my right hand and I'm left handed, so no embarrassing splinter removal ;)

tlr

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I thought that the following info might be useful to some folks as I had the full fasciectomy last week.

I have had a Dupytrens contracture on my left hand for as long as I can remember, probably since my early 30s which was 20 years ago. It was pulling my ring finger in at the MCP joint and got to the point that I couldn't hand jam as I couldn't get my hand in the crack in the first place.

12 or 13 years ago I had the needle fasciotomy which was quick and easy with good results, but the contracture returned with a year or 2. As I had pretty much stopped climbing by then I just ignored it.

My wife is an upper limb orthopaedic anaesthetist, so she and her surgeon see hundreds of Dupytrens and kept a vague eye on it along with the occasional look at it from a friendly surgeon in social settings. Although it never bothered me in the slightest (cycling, photography, computer stuff), once it reached about 70-80 contracture they (wife / surgeon) decided it would be better to sort it before skin grafts were required.

I then saw the surgeon 'officially' through the NHS, got into the system and scheduled an autumn op last week. This involved turning up at the hospital at 7am, having a general anaesthetic and a block (could just have had a block, but I decided I had no wish to witness the carnage) and home by 1pm.

One long, zig-zag cut and 30 stitches later, my hand lays flat again and I have had zero pain from the op. I had a plaster splint for 5 days which was a bit tedious but now I just have some plasters and tubi-grip to protect it with a splint to wear at night. The stitches will dissolve in a couple of weeks at which point I need to massage it with moisturiser.

It'll be another month before I can ride outside, but I will be on the turbo once the stitches have gone and it's safe to get the wound wet. I'd imagine that it would be at least that long before climbing too, if not longer.

For those of you who have seen Pod's UKC article, my contracture was considerably worse than his, and the surgeons cut longer (albeit I only had one contracture).

Early days, but seems successful so far.


SA Chris

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Good to know it's not that bad once it comes to it! I'm not there yet...

steveri

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Thanks - that's good data. I've had it 10+ years and the lumps have been getting worse more recently. Contractures still not too bad but the lumps are starting to get in the way.

I mentioned it in a recent rheumatology appt again and they've referred me onto the orthopods. The initial concern from rheumatology was "has it gone too far to treat?" ...but that doesn't sound like an issue from your update, so thanks for taking the time.

SA Chris

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From what I've read, most people never progress beyond nodules / lumps, and those who develop into cords, most never get contractions, and generally, surgery seems to be avoided until there are contractions, so not sure when "too far to treat" is regarded as.

steveri

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Yep, best not give too much weight to an off the cuff remark.

SA Chris

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Is that a deliberate pun or are you just going to palm it off as one?

steveri

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If only I were clever enough for that sleight of hand.

 

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